1. Exploring the experiences of families with a child currently being assessed for Autism Spectrum Disorder
Laura Jackson

2. Study Aims Explore thoughts and feeling toward diagnostic process
Impact of process on child and parent well being
What support is available for families

3. Results

4. Perception of Professionals
Effected how parents viewed and experienced the diagnostic process
Initial contact with professional at CDC

5. Perception of Diagnosis
Majority of parents reported a negative experience
Length of wait
Detrimental effect on parent well being

6. Support During Process
Seen unanimously as essential
Parents description of support
Lack of information from initial CDC
Confidence in accessing future support
Autism

7. Experience of Multi Agency Working
Lack of communication between professionals
Confusion about job roles and titles
Need for lead professional / case worker / family support

8. Effect of Diagnosis Process
Effect of overall experience is a cause for concern
Mental health issues and family break ups
Negative spiral of thought In relation to caregiver role
Struggle to obtain diagnosis , out of 8 parents average wait; 14 months ;1 parent 24 months
‘push’ and ‘fight

9. Implications for Service Development
Reflection on how to approach the potential diagnosis of ASD with parents
Provision of step by step guide to process at initial CDC
Provision of written info at initial CDC
List of professionals and job roles
Reduce Waiting List
Social Story for children in preparation for CDAC clinic
Review of existing information

10. ….any questions? Thank you!! Thank you for taking part
Thank you for listening
….any questions?