1. Supporting men with testicular cancer Patient Involvement Model Sue Brand Germ Cell CNS

2. Adjuvant Chemotherapy Metastatic Disease Chemotherapy/RT Surgery
Active Surveillance
Adjuvant Chemotherapy
Metastatic Disease Chemotherapy/RT
Surgery
Metastatic Disease
Complex
Poor Prognosis
Germ Cell CNS/Website/Buddies/TYA Youth Worker*
Website:
Get into your NEW PANTS
It's in the Banter
Germ Cell CNS
During Treatment:
Germ Cell CNS/Buddies/Consider psychologist with complex patients
Living Well Treatment Clinic: OPD weekly
Post treatment:
Website: Get into your NEW PANTS & Holistic Needs Assessment Clinic
Holistic Needs Assessment
Survivorship Toolkit 1 day course
If further support required patient can self-refer to the weekend self-development course / psychology
If still struggling consider further HNA appointments
NB: If patient is struggling with late effects, sexual function issues, extreme fatigue, depression and other complex issues consider specialist referral to psychologist, sexual counsellor, palliative care team or endocrinology.

3. Holistic Needs Clinic
Nurse Led clinic using the Macmillan Concerns Check List.
Issues most concerned about:
Money & Work
Education and grants
Anxiety & fear of recurrence
Difficulty making plans
Guilt for being cured
Partnerships
Recovery time
Support Groups
Hobbies

4. T - Trim back the Alcohol and give up recreational drugs
Get into your NEW PANTS
N- Now What?
E - Emotional Health
W - Work and Education
P - Physical Health
A - Alter your Diet
N - No to Smoking
T - Trim back the Alcohol and give up recreational drugs
S - Sex and relationships

5. It’s in the Banter – Support Activities

6. Survivorship Toolkit and Personal Development Course

7. Averages ST Course 2016/2017

8. What did you enjoy about the day?
Meeting, sharing with others and discussing each other’s experience. Also, Michaels and Sue’s experience is great to ask questions etc…
Meeting other men with similar and diverse experiences of testicular cancer
Timeline and voicing my personal story with people who came from different experiences of cancer
Seeing how other people can cope with that situation, getting some advises how to change my life.
Meeting other people that have gone through the same as me, hearing their journey to where they are now
Information, knowing other men with the same cancer as yourself. Not being alone. Finding out about what you can do also taking more control of your life and yourself
Meeting other people and hearing about their experiences, good information as well
Theory of managing and coping with stress. Meeting others in similar situations

9. What did you enjoy about the day?
Diet and Exercise Sections
Relaxed attitude. Talk on link between stress and well-being. Lunch wasn’t bad either!
The chance to sit in a room with other blokes who have all been through the same thing and to stop and process it all. To take some time out and think about it all. Also taking some motivation to make a plan to change habits
The 3 points about taking charge of your life – stress, exercise and eating.
Sharing experience with others
Great day very informative. an opportunity for some time out from everyday life to discuss with others
Meeting others ad hearing about the facts of cancer
Managing stress well

10. What did you enjoy about the day?
The medical information - helpful it was by a nurse and not the internet
Understanding more about cancer, the venue and getting to meet other cancer patients - sharing stories and make friends
Really useful to talk with and share experiences with everyone. I would absolutely recommend it
The excellent delivery of course and talking to other guys in the same situation
The lifeline was a good opportunity to get into a bit more detail and know peoples experiences. Also liked the medical stuff
Sharing from each other about their life
Science
Interactions with other in similar circumstances
I enjoyed sharing the company with people similar to myself and gaining nutritional and fitness advice
Some were worried why men had not turned up and wanted to help encourage them to come.

11. What did you not like about today?
?? it is a all round good experience
Exercise sharing session – know your audience. Need to adapt to the peoples experience/habits/age etc…
Need more physical exercise demonstrations
Very quick, need more detail – good for overview
Nothing disliked, but felt awkward with the sexual stuff
There was nothing that I didn’t like

12. Testosterone Deficiency in Germ Cell Patients BHOC 2011 – 2016
Lara Gibbs
ST5 Medical Oncology

13. Percentage of patients in each T level group (n = 426)

14. T according to initial chemotherapy

15. In the surveillance group:
11% reported symptoms of testosterone deficiency
18% received testosterone replacement
7% were referred to endocrinology
Of patients treated with carboplatin:
26% reported symptoms of testosterone deficiency
23% received testosterone replacement
17% were referred to endocrinology
Of patients treated with BEP or EP (or other chemotherapy):
19% reported symptoms of testosterone deficiency,
14% received testosterone replacement
9% were referred to endocrinology

16. Any Questions