1. Welcome
Bathrooms
Cellphones
An Overview of Charting the LifeCourse for Children, Youth and Adults``

2. Charting the LifeCourse Trainings are provided by
and
Funding for this statewide effort is provided by
The work I am sharing today is made possible by funding and partnership with UC UCEDD/ Nisonger and DODD
We are all part of the Ohio Developmental Disability Network WE are authorized under the DD Act
State Councils on Developmental Disabilities
Protection and Advocacy systems
University Centers for Excellence in Developmental Disabilities Education, Research and Service
Projects of National Significance
We all work collaboratively to support independence, advocacy and community integration of individuals with developmental disabilities through:
Interdisciplinary training of students and professionals on developmental disabilities
Research and analysis to develop new knowledge on disability that can be applied to programs and policies’
Information sharing and technical assistance for the community at large
Community Education and Collaboration

3. Celia Schloemer Family Support Coordinator UC-UCEDD
Our Title
How our work fits into the 4 Core areas
what brought you to this work

4. What is the LifeCourse Framework
The LifeCourse Framework was created by families to help individuals and families of all abilities and all ages develop a vision for a good life, think about what they need to know and do, identify how to find or develop supports, and discover what it takes to live the lives they want to live.
Introduction Activity
Read Slide out loud, Typically try not to read slides verbatim, but…
Read slowly to yourself again, what phrase stands out to you and why?
Turn to the person next to you, introduce yourself, what brought you here and what stood out and why.

5. All people and their families have the right to live, love, work, play and pursue their life aspirations in their community.
Framework is built on the core belief that…

6. What is your vision of a Good Life
TRAJECTORY
When did you begin dreaming about what your life would look like. What were the first memories you have of picturing your future?
Where you 2 or three when you imagined being a parent? Were you a teen when you pursued your first job and began to imagine growing in your skills and making more money? Was it when you were asked by a teacher or parent what do you want to be when you grow up?
It is unfortunate but true that once faced with the reality of disability we often temper or change these conversations for ourselves or family members.
So as a group at your table I want you to take the large Paper with the trajectory on it. And I want you to briefly discuss amongst your elves what a good life looks like. For this exercise I want you to look at it over all and not limit it to how your life is currently but just over all what is important for a GOOD LIFE

7. LifeCourse Portfolio

8. Trajectory towards Good Life
Trajectory towards Life Outcomes
Who found that difficult. What was holding you back. Would it be easier to identify what would not be considered part of a good life?
And when you look at what isn’t part of what you consider a good life, can you identify a few experiences that would lead to that out come?
What happen to you when you were 14…Place it on the Trajectory
What about for what is a desired Good Life Outcome?
Trajectory towards things unwanted

9. Life Experiences=Life Outcomes
Vision
More Possibilities
Expectations
Experiences & Transitions
Opportunities
Because what we have come to know is that Life experiences lead to Life Outcomes and when we identify and create experiences that are desired and will keep us on the trajectory we are more likely to reach our desired Good Life

10. Experiences and Transitions become points on the Trajectory
Getting New Diagnosis
Parents Turn 65
Medicare & SSDI
Leaving Early Childhood/ enter school
Transition planning
Living Adult Life
My parents have passed away, what do I do?
Turning 18. Leaving school at 18 or 21
Chores and Allowance
Scouts, 4H, faith groups
Playing sports or an instrument
Making Mistakes
Learning to say “no”
Parties with friends
Summer jobs, babysitting
Learning to be a “member” of
the family and of the community
Making Choices
Understanding and Owning
Expectations
Meeting Milestones
Loosing the support of your parents
Experiences and Transitions become points on the Trajectory

11. Focus on Past, Present and Future Life Experiences at any Life Stage
Trajectory towards Life Outcomes
Friends, family,
self-determination, community living, social capital and economic
sufficiency
Focus on Past, Present and Future Life Experiences at any Life Stage
Trajectory towards Life Outcomes
Vision of What
I Don’t Want
So what these tools do is enable and encourage us to look at Past Present and possible future Life experiences that empower us to identify and pursue a trajectory towards the desired outcome or good life. Book assists with offering anticipatory guidance.
Did not identify the good life within the constraints of what is available or what we are eligible for.
Trajectory towards things unwanted
Adapted from “Life Course Theory” and Rethinking MCH: The Life Course Model as an Organizing Framework, HRSA, Maternal and Child Health Bureau

12. My LifeCourse Portfolio

13. Charting the LifeCourse Trajectory

14. Achieving Outcomes for Connected Life Domains
Daily Life and Employment
What do I want to do all day?
Healthy Living
What do I need to do to stay healthy (physical and mental) so I can have the live I want?
Community Living
Where do I want to live and what support do I need to live there?
Safety and Security
What do I need to be safe (emergency plan, support in my decisions) or Secure (financially, phsycally)
BLUE BOOK:
Another piece of the framework are the 6 life Domains. When they looked closely at individuals and families who had successfully integrated services to create their good life they did not just do this in one area. All of us develop our lives across different areas.
Everyone (whether they have a disability or not has to figure out what they are going to do during the day…school, work, volunteer. Where they are going to live and how they are going to stay safe and healthy.
Using the CTLC tools helps you evaluate any of these domains at any age and identify next steps or experiences that will lead you on your trajectory to a good life.
Social and Spirituality
Who do I want to spend time with and what things will I do with them?
Citizenship and Advocacy
(valued roles, Able to make choices, setting goals, responsibility, leadership, peer support)

15. Achieving Outcomes for Connected Life Domains

16. Once you have your vision

17. A One (1) Page Description can be used
For a specific purpose: for example new situations- like a new job; meeting new people; at the front of the persons records.
An at a glance positive way to share key information about:
What people like and admire
What is most important to
How to best support
Purpose: to briefly outline the most likely possible uses for a one page description and the content that is core for an effective one page description
Script:
A one page description is developed for a specific purpose.
A one page description does not take the place of a person centered description.

18. Like and Admire
What people like and admire about you gives you value. It is important to be able to identify these because
Asking other what they like and admire in me helps me see my own value
If I can identify my value, I can better be of value to others
With Value comes confidence
With Confidence comes bravery
With value comes relationship
Meaningful relationship prevents isolation
PURPOSE:
Define Important TO
Six categories that commonly make people happy, fulfilled, content, satisfied, comforted. (other synonyms: pleased, at ease, comfortable)
SCRIPT
Emphasize that this is about humans not just about disability –
Ask how many people are living with another adult
How do they know if the person they live with is happy? What do they do?
Select 1 person and ask her (him) if her partner’s behavior is ever at odds with what he says (his words)
Ask “when what he says is different from what he does – which do you listen to, words or deeds?”
Hopefully the person will answer – “deeds” – so we already know that we should listen to behavior
Note that when we do not trust people we are hyper-vigilant about what they do much more than about what they say
For people who use disability services -
We often need to look at behavior because we have done a really good job of training people to tell us what we want to hear
When people don’t use words to talk, we have to listen to their behavior
TIPS:
TIME: 2 minutes
NOTES:
TLC-PCP

19. Important TO
What is important to a person includes those things in life which help us to be satisfied, content, comforted, fulfilled, and happy. It includes:
People to be with /relationships
Status and control
Things to do and places to go
Rituals or routines
Rhythm or pace of life
Things to have
PURPOSE:
Define Important TO
Six categories that commonly make people happy, fulfilled, content, satisfied, comforted. (other synonyms: pleased, at ease, comfortable)
SCRIPT
Emphasize that this is about humans not just about disability –
Ask how many people are living with another adult
How do they know if the person they live with is happy? What do they do?
Select 1 person and ask her (him) if her partner’s behavior is ever at odds with what he says (his words)
Ask “when what he says is different from what he does – which do you listen to, words or deeds?”
Hopefully the person will answer – “deeds” – so we already know that we should listen to behavior
Note that when we do not trust people we are hyper-vigilant about what they do much more than about what they say
For people who use disability services -
We often need to look at behavior because we have done a really good job of training people to tell us what we want to hear
When people don’t use words to talk, we have to listen to their behavior
TIPS:
TIME: 2 minutes
NOTES:
TLC-PCP

20. How to Support me PURPOSE: Define Important TO
Six categories that commonly make people happy, fulfilled, content, satisfied, comforted. (other synonyms: pleased, at ease, comfortable)
SCRIPT
Emphasize that this is about humans not just about disability –
Ask how many people are living with another adult
How do they know if the person they live with is happy? What do they do?
Select 1 person and ask her (him) if her partner’s behavior is ever at odds with what he says (his words)
Ask “when what he says is different from what he does – which do you listen to, words or deeds?”
Hopefully the person will answer – “deeds” – so we already know that we should listen to behavior
Note that when we do not trust people we are hyper-vigilant about what they do much more than about what they say
For people who use disability services -
We often need to look at behavior because we have done a really good job of training people to tell us what we want to hear
When people don’t use words to talk, we have to listen to their behavior
TIPS:
TIME: 2 minutes
NOTES:
TLC-PCP

21. How to Identify, Develop and Integrate Supports & Services
HEALTHY LIVING
How to Identify, Develop and Integrate Supports & Services

22. My Integrated Good Life
Have
Need
Strong
Happy
Wants friends
Tries hard
Loves
people
How to Identify, Develop and Integrate Supports & Services
Need
Have
My Integrated Good Life
Have
Need
Need
Have
Have
Need

23. My Integrated Good Life
Have
Need
Strong
Happy
Wants friends
Tries hard
Loves people
Rides Bus
How to Identify, Develop and Integrate Supports & Services
Patience Be safe
Be Social
Use Uber
Need
Have
My Integrated Good Life
Have
Need
Need
Have
Have
Need

24. My Integrated Good Life
Have
Need
Strong
Happy
Wants friends
Tries hard
Loves people
Rides Bus
How to Identify, Develop and Integrate Supports & Services
Patience Be safe
Be Social
Use Uber
Brother
Sister
Schoolmates
Cheer friends
Swim team
Need
Have
My Integrated Good Life
Have
Need
Need
Have
Have
Need

25. My Integrated Good Life
Have
Need
Strong
Happy
Wants friends
Tries hard
Loves people
Rides Bus
How to Identify, Develop and Integrate Supports & Services
Patience Be safe
Be Social
Use Uber
Brother
Sister
Schoolmates
Cheer friends
Swim team
Real Friends
Need
Have
Connections:
Church
Soccer team
Neighborhood
My Integrated Good Life
Have
Need
Need
Have
Have
Need

26. My Integrated Good Life
Have
Need
Strong
Happy
Wants friends
Tries hard
Loves people
Rides Bus
How to Identify, Develop and Integrate Supports & Services
Patience Be safe
Be Social
Use Uber
Mom
Older Brother
Grandma
Friends
Need
Have
Connections:
Church
Soccer team
Neighborhood
My Integrated Good Life
Have
Need
TR Swim
camp
IEP
ESY
Need
Have
Have
Need

27. My Integrated Good Life
Have
Need
Strong
Happy
Wants friends
Tries hard
Loves people
Rides Bus
How to Identify, Develop and Integrate Supports & Services
Patience Be safe
BeSocial
Use Uber
Mom
Older Brother
Grandma
Friends
Need
Have
Connections:
Church
Soccer team
Neighborhood
My Integrated Good Life
Have
Need
TR Swim
camp
IEP
ESY
SwimTeam
Youth Group
Cheer Leading
Need
Have
Have
Need

28. My Integrated Good Life
Have
Need
Strong
Happy
Wants friends
Tries hard
Loves people
Ride Bus
How to Identify, Develop and Integrate Supports & Services
Patience Be safe
Be Social
Use Uber
Mom
Older Brother
Grandma
Friends
Need
Have
Connections:
Church
Soccer team
Neighborhood
My Integrated Good Life
Have
Need
TR Swim
camp
IEP
ESY
SwimTeam
Youth Group
Cheer Leading
Need
Have
Have
Need

29. My Integrated Good Life
Have
Need
Strong
Happy
Wants friends
Tries hard
Loves people
Ride Bus
How to Identify, Develop and Integrate Supports & Services
Patience Be safe
Be Social
Use Uber
Mom
Older Brother
Grandma
Friends
Need
Have
Connections:
Church
Soccer team
Neighborhood
My Integrated Good Life
Have
Need
Workout space
Movie or book club
Cooking class
Ride Share
Bus Line
TR Swim
camp
IEP
ESY
SwimTeam
Youth Group
Cheer Leading
Need
Have
Have
Need

30. Families need Support when Identifying and Integrating Supports
HEALTHY LIVING
Families need Support when Identifying and Integrating Supports
My Plan for the Future

31. PROBLEM SOLVING FOR SPECIFIC ISSUE OR GOAL
HEALTHY LIVING
PROBLEM SOLVING FOR SPECIFIC ISSUE OR GOAL

32. Families need Support when Identifying and Integrating Supports
HEALTHY LIVING
Families need Support when Identifying and Integrating Supports
My Struggle

33. Tools to create a trajectory towards our good life outcomes
So now we are ready for the BIG Finish..
From the framework came the tools
The need for more integrated services lead to the integrated star
Expectations, opportunities and experiences lead to supporting our vision for a good life led us to identifying and keeping on the trajectory

34. www.supportstofamilies.org www.lifecoursetools.org www.ucucedd.com
Where to get more information: