1. Support Model as of 9/27/17 Partners: Provide A Support: To:
Resulting in:
Regional: Family Advocacy Orgs, Cultural Orgs, Weitzman Institute, Northeast Telehealth Resource Center, Regional Health Equity Council, VMP Genetics, Genetic Specialists, Genetic Counseling Training Programs, Public Health, Other Community Orgs
National: HRSA, NCC, Genetic Alliance, Family Orgs, Western States, Heartland
Mgmt: UNH, Women & Infants Hospital RI
Educational Supports
Web based info and resource map
Tailored educational resources for health and non-health providers
18 session complex pediatric ECHO
Families, Primary Care Providers (Docs,
Nurse Practitioners, Physician Assistants),
Non-Health Providers (Community Health Workers,
Home Visitors, Family Voices Staff, etc.)
Short Term Changes, Increase in
# of individuals, families, and providers accessing genetics information
# of providers receiving targeted training and technical support concerning genetics
# of underserved patients with a genetic condition receiving enhanced care
# of providers trained in utilization of telehealth resources
Intermediate Term Changes
Improved coordination of services
Patient care that is informed by genetics information
A strengthened genetics network which facilitates improvements in care
Long Term Changes
Improved health of individuals living with a genetic condition
Technical Support
Adapting to and utilizing telehealth resources
Genetic Counselors, Genetic Counseling Students, Primary Care Providers
Clinical Support
Genetic specialist clinical consultations to primary care providers
Primary Care Providers