1. Broadening the perspective: Nordic research on health and welfare
Peter Allebeck
Forte/ Karolinska Institutet /Nordic Programme on Health and Welfare

2. Assets for health research in Nordic countries
Comprehensive health care systems
Universal coverage
Person identification numbers
Quality registers
26 Million population cohort

3. Three types of welfare systems (Gøsta Esping Andersen)
The liberal (USA, GB): Market oriented
The conservative (Continental Europe): Corporate, family oriented
The social democratic (Nordic countries): Universal coverage, comprehensive models

4. Unique sources of historic statistics
Pehr Wargentin,
Founder of Tabellverket => Statistics Sweden

7. Similarities and differences
Swedish labour market model
Danish flexicurity
Norwegian 100% sickness compensation
Finnish municipalities
Icelandic…..

8. Compa-rison labour market policies

9. Agardh et al. Addiction: In press, 2016

14. 14 proposals for future Nordic health cooperation
Bo Könberg

15. 1 Antimicrobial Resistance 2 Highly-specialised treatments
3 Rare diagnoses
4 Register-based research
5 Public health
6 Inequalities in access to health
7 Patient mobility
8 Welfare technology
9 e-Health
10 Psychiatry
11 Health preparedness
12 Pharmaceutical co-operation
13 Exchanges for officials
14 National experts in the EU Commission
Nordisk samarbejde

16. Nordic Programme on Health and Welfare
Aims
To stimulate collaborative Nordic Research on Health and Welfare, focusing on Nordic added value
To improve health and welfare in the Nordic countries
To find solutions to societal and public health challenges through high-quality research
To analyze policy issues in the Nordic countries relevant to health and welfare research and suggest solutions to facilitate Nordic collaboration

17. Programme Committee Chair (Erland Hjelmquist)
Academy of Finland (Jarmo Wahlfors)
FORTE, Sweden (Peter Allebeck)
DFF Medical Sciences, Denmark (Jørgen Frøkiær)
RANNIS, Iceland (Ása Guðrún Kristjánsdóttir)
Research Council of Norway (Berit Nygaard)
Nordic Council of Ministers (Anne Hammarström)

18. Three calls up to now
Research projects on distribution of health and welfare
140 MNOK
5 projects funded
Research projects on user-driven innovation within health and welfare
11 MNOK
2 projects funded
Research infrastructure pilots in health and welfare by combining socioeconomic- and health-related registers
40 MNOK
4 projects funded

19. Distribution of health and welfare
Coming of Age in Exile (CAGE) - Health and Socio-Economic Inequities in Young Refugees in the Nordic Welfare Societies
Working hours, health, well-being and participation in working life
Understanding the Link between Air Pollution and Distribution of Related Health Impacts and Welfare in the Nordic Countries (NordicWelfAir)
Psychosocial work environment and healthy ageing
Social Inequalities in Ageing (SIA); Health, Care and Institutional Reforms in the Nordic Welfare Model

20. User-driven innovation within health and welfare
ActivABLES: Tangible Interaction to Support Effective and Usable Stroke Rehabilitation at Home.
Symptom monitoring after hospitalisation in patients with advanced heart failure – a Nordic-Baltic study.

21. Infrastructure pilots combining socioeconomic and health-related registers
A Nordic Rheumatology Register Pilot to facilitate collaborative studies based on linkages of clinical data with national health.
Adult Life after Childhood Cancer in Scandinavia (ALiCCS): Socioeconomic consequences of long-term survival
Contingent Life Courses (C-LIFE)
Nordic Occupational Register – a tool for estimation of the potential of workplace and population level interventions

22. In preparation: Nordic register-based research projects (around 60 MNOK)
Research questions addressing societal challenges (working life, migration, aging)
Combining health and welfare data
Monitor hurdles and bottlenecks to collaborative infrastructures (ethical, legal, technical)

23. Background report 2014
listing possibilities and challenges

24. Recommendations
a cooperation platform for the Nordic bureaus of statistics, national health register institutes and other register-hosting bodies
mutual recognition of ethical review permissions between the Nordic countries, including models for informed consent
actively follow and influence the ongoing revision of the European legislation targeting data protection, clinical trials and copyright legislation

25. Recommendations, cont
a research programme to pilot the joint Nordic use of registers
pilot projects using joint Nordic register data sources within the field of health and wellbeing
Future vision: Nordic Centre for Register-based research

28. Jensen
Odd
Sigridur
Pekka
Allebeck

29. Nordic Statistical Institutes:
Task force to facilitate collaborative infrastructures
Reviewing systems and policies for access and sharing data
Facilitating access for researchers
Common portal for entry
Common Nordic security agreement
Harmonizing variables

30. Quality registers: Crossing over health services and collaborative research
Professional interest to improve services
Access to data for research purposes
Pilot study on tonsil registers

31. In summary Nordic assets: ”Gold mine for research”
The 26 Million cohort
Comprehensive health and welfare systems
Tradition of person identification
History of statistical records and collection of data
Solid basis for advanced clinical and life science research

32. We need Funding Committments from authorities and ministries
Holistic view on health research
Researchers looking not only at UK and US