1. The national picture Transforming Care for children and young people
September 2016

2. The wider Change Agenda for Children & Young people with Learning Disability &/or Autism
Children and young people with learning disabilities and / or autism
SEND reforms
Transforming Care
Futures in Mind
Schools / Education agenda
Young Offenders agenda
Childrens social work reform
Ofsted / CQC Inspection framework
This work requires joined up thinking & integrated processes between agencies and organisations to achieve the best outcomes for young lives.

3. Aims of the children and young people work stream
To prevent unnecessary admission to hospital and avoid lengthy stays, ensuring treatment has clearly defined outcomes, planning for discharge from admission (Care and Treatment Review policy)
To identify specific pathways that will enable children and young people to remain with or near to family and get the support they need
To ensure that children and young people with LD and/or autism leave school with a good education, health and care plan that supports their transition to adulthood leading to better outcomes for them and their families.
To encourage innovative ideas to be tested/evaluated of supporting children, young people and families through a grants process
To ensure children, young people and their parent carers participate and co-produce their local Transforming Care plans.

4. The Team Eric Barker – work stream lead Sue North – social care and
education adviser
David Gill – learning disability adviser
Phil Brayshaw – service model lead
Tracy Holmes – Project Management Support
Team now fully recruited and in place.

5. Regional Strategic Case Managers
Sarah Jackson - North
Siobhan Gorry – North
Tonita Whittier – Midlands & East
Maureen Banda – London
Cindy Gordillo– South

6. Governance Advisory User Group has parent carer representation
Learning disability adviser attends
Steering Group consists of Department for Education, Department of Health, parent carer representatives, Association of Directors of Children’s Services, Council for Disabled Children, Association of Director of Adult Services

7. Children and young people in hospital
July 2016
140 children and young people in hospital due to learning disability and /or autism and behaviour that challenges who may or may not have mental health condition

8. Care and treatment reviews
Constantly changing numbers.
116 hospital CTRs completed for under 18s before April % led to a discharge or community plan being put in place.
April to July there has been 38 hospital CTRs.30% with a positive outcome.
16 community CTRs completed between April and July.56% resulted in a decision not to admit .
There are some anomalies in reporting and recording which we continue to explore.

9. At risk of admission register
Not clear if all areas have ensure their at risk of admission registers include children and young people
Requirement that all children and young people in 52 week residential schools should be included (with agreement)
Need to consider how this can link to Disabled Children’s Registers
Consider where this is within local offers

10. Children and young people in 52 week residential schools
Local authority survey undertaken to determine how many children and young people with learning disability and / or autism are currently in 52 week residential schools
151 responses
1122 placed in 52 week schools
74% placed at distance

11. Children and young people in 52 week residential schools

12. Service model and children and young peoples pathway.
Service model and children and young peoples pathway work is underway
Aim is for completion by October 2016
This should support commissioners and local partners as they plan and commission services to meet the needs of children and young people with learning disabilities and / or autism

13. Grants programme 20 small grants administered Jan – March 2016
Range of projects undertaken to support children and families with learning disabilities and autism
National event held and report being finalised.

14. Themes
Supporting children, young people and their families to enable them to remain living at home or in their local community.
To ensure that young people who are placed in either 52 week residential special schools or specialist learning disability or mental health hospitals including assessment and treatment units, CAMHS inpatient service and secure services, are able to maintain strong links to their families and / or local communities that supports transition planning.

15. 63 applications by the end of December 2015
A selection panel was held in early January 2016 to review and assess the applications.
Panel members included:
Representatives from NHS England
Parent carer representatives
Learning disability adviser

16. Grant Awardees Avenues Trust Inclusion North Barnardos KIDS
Barnet, Enfield & Haringey Mental Health Trust
Mencap (Royal Mencap Society)
Cambridgeshire & Peterborough NHS Trust
Mental Health Foundation
Challenging Behaviour Foundation
Midland Mencap
Children’s Sleep Charity
Mixit Days
Circle of Life
National Development Team for Inclusion (NDTi)
Council for Disabled Children
People Matter Isle of Wight
Housing & Support Alliance
School Development Support Agency
Home-start Slough
The Toby Henderson Trust

17. Learning National event held on September 13th
Some video clips of projects shortly available
Report being compiled with outcomes from all of the grant projects

18. Lenehan Review
Dame Christine Lenehan has been commissioned by the Department of Health to undertake a review of the progress, challenges and issues in relation to transforming care for Children and Young People
Review is being finalised
Working title is “Nobody’s business”

19. Contact details www.england.nhs.uk/learningdisabilities/care/camhs
9/17/2018

20. Thank you for listening Any Questions?