1. CFRI: Your Partner in Living
CFRI Mission Statement
CFRI exists to fund research, to provide educational and personal support, and to spread awareness of cystic fibrosis, a life-threatening genetic disease.
Siri Vaeth Dunn, MSW Programs & Outreach Manager
Research for Living ~ Partners for Life

2. CFRI’s Programs Include: Online MBSR Class CF Caregivers Support Groups Embrace Mothers Retreat Counseling Support CF Summer Retreat National CF Family Education Conference Many Voices ~ One Voice CF Advocacy & Awareness Campaign Educational Resources CF Research Funding
Research for Living ~ Partners for Life

3. “Living Mindfully with CF” Mindfulness Based Stress Reduction Class
Online
“Living Mindfully with CF”
Mindfulness Based Stress Reduction Class
Offered FREE to national CF community;
Taught by Julie Desch, MD;
Open to adults with CF & family;
Six weekly classes, and “online retreat;”
Large & small group discussion, yoga, and meditation.
Research for Living ~ Partners for Life

4. CF Caregivers Support Groups: Third Tuesday of Every Month
You are not alone.
- Parents of Children with CF: 5:00 pm
- Parents/Partners of Adults with CF: 6:00 pm
- Call in or Attend in Person
- Facilitated by Meg Dvorak, LCSW
CF Social Worker at Stanford
Research for Living ~ Partners for Life

5. Research for Living ~ Partners for Life
Embrace Retreat
For Mothers of Children & Adults with CF
May 4 – May 6, 2018
Vallombrosa Center, Menlo Park
Research for Living ~ Partners for Life

6. Individual Counseling Support
Research for Living ~ Partners for Life
Individual Counseling Support
CFRI’s CF Quality of Life Program
A Living Legacy of Peter & Kathy Judge
CFRI will cover up to $120 per session for eight sessions of therapy with the licensed therapist or clinical psychologist of your choice.
Available to individuals with CF, their parents, siblings, spouses/partners.
Research for Living ~ Partners for Life

7. Research for Living ~ Partners for Life
CFRI’s 2018
CF Summer Retreat
August 15 – August 21, 2018
Vallombrosa Retreat Center
Menlo Park
Research for Living ~ Partners for Life

10. Many Voices ~ One Voice CF Awareness and Advocacy Campaign
Together we are a strong community with the ability to impact public policy related to healthcare protections and access to quality, affordable healthcare and therapies.
• Action Alerts
• CF Awareness Events – CA and Beyond
• Externally-Led FDA Event
• Rare Disease Partnerships
Join Us!

11. CFRI FUNDED RESEARCH
CFRI’s supports researchers at academic and medical institutions across the U.S. who bring new perspectives to the study of CF.
CFRI funds projects that are original, probing, and/or pioneer a new approach to a therapy or cure for cystic fibrosis.

12. Research for Living ~ Partners for Life
Thank you!
For more information about these programs,
contact
Join us!
Programs discussed today have
been generously underwritten by:
Vertex Pharmaceuticals, Genentech, Gilead Sciences, Chiesi USA, AbbVie, Novartis, Boomer Esiason Foundation, and the Global Genes Foundation