1. Pedimacs 2016

2. Organizational Structure
Intermacs:
NIH
Industry
Hospitals
Medamacs
Imacs
Pedimacs

3. Pedimacs: Established September 2012

4. Enrollment Summary

5. Case Volumes

6. Academic Productivity
Manuscripts (accepted for publication in May issue of JHLT)
Outcomes of Children Implanted with Ventricular Assist Devices in the United States: First analysis of the Pediatric Interagency Registry for Mechanical Circulatory Support
Outcomes of Pediatric Patients Supported with Continuous-Flow Ventricular Assist Devices: A report from the Pediatric Interagency Registry for Mechanical Circulatory Support
Adverse Events in Children Implanted with Ventricular Assist Devices in the US: Data from the Pediatric Interagency Registry for Mechanical Circulatory Support
36 Authors from 14 institutions

7. Abstracts at ISHLT
Infectious Complications of Ventricular Assist Device Use in Children in the US: Data from the Pediatric Interagency Registry for Mechanical Circulatory Support (Pedimacs)
Utilization and Outcomes of Temporary Ventricular Assist Devices in Children : A Report from the Pediatric Interagency Registry for Mechanical Circulatory Support (PEDIMACS)
Utilization and Outcomes of Ventricular Assist Device Support in the Adult Congenital Heart Disease: An Analysis of the Interagency Registry for Mechanically Assisted Circulatory Support (INTERMACS)

8. Work In Progress
Changes in renal function following left ventricular assist device placement in pediatric patients: A Pedimacs Analysis
Outcomes of infections in children and young adults with ventricular assist devices: an analysis of the PEDIMACS/INTERMACS database
Proposal for Linkage of the Pedimacs and PHIS databases to evaluate: Resource Utilization in Pediatric Patients Supported with Ventricular Assist Devices

9. Additional Pedimacs Output
Quarterly Public Report (Federal Partners Report)
Center Data Quality Reports
Center Quality Assurance Reports

10. Pedimacs Proposals Submission process via Intermacs website
Submit proposal for analysis by Intermacs staff
Deadlines twice yearly
Review by DAAP
1 abstract for AHA
2 abstracts for ISHLT
Submit proposal for analysis by researcher
No deadlines
Dataset provided

11. Pedimacs DAAP Committee
Co-Chairs
Frank Pagani
David Rosenthal
Members
Ryan Cantor
Betsy Blume
Jim Kirklin
Joe Rossano
Susan Meyers
Aamir Jeewa
Jeanne Love
Robert Jaquiss
Craig Collum
Sabrina Law
David Morales
Christina Vanderpluym
Jeff Gossett

12. The Year Ahead (or how to get involved)
Review of Data Fields
Evaluation of QOL data and how to improve this section of Pedimacs
Linkages
PHIS
PHTS
Intermacs