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Planning for home: Family-arranged residences
Rosemary Alexander, Pathways to Adulthood Program Texas Parent to Parent, txp2p.org
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Questions to think about
What’s your timeline? Does my child want to live with family, alone, with 1-2 people, or in a group setting? What supports does she need? What funding sources are available and what are their requirements? How much time, energy and assets do I have available for a home set-up? 2
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Option: State-funded homes
HCS Group Homes (4 residents max), based on having HCS Medicaid Waiver, long wait ICF/IDD group homes (6 or more), Intermediate Care Facility for people with Intellectual and Developmental Disabilities, access LIDDA Residences vary widely, visit and ask questions One key question: what do the residents do during the day? 09/09/15 3 3
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Option: Privately funded communities
Examples-- Down Home Ranch near Austin Marbridge Ranch near Austin Brookwood Community near Houston Cornerstone Ranch in McKinney 2-3 in a small house to dorm style living Medicaid waivers don't work here: use private pay, SSI, earned income, special needs trust 4
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Option: Parent-arranged residences
1-3 people living together with supports as needed In a place separate from family Initiated by family or individual Operated by family or individual Set up individually or with other families 09/09/15 5 5
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How does it compare with other residential choices?
Advantages: gives resident and family greater control over the environment and more individuality Disadvantages: higher overhead-- can be a big commitment of time, energy and $; if several residents live together, family must share decision making with others 09/09/15 6 6
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Options for parent-arranged residence
Redesign your home, lot, neighborhood: Partitioned area for adult in your home Home in your backyard or garage apartment (check zoning) Adult inherits parent home 09/09/15 7 7
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Options for parent-arranged residence
Set up another household: Adult lives with another family or care-giver in the caregiver’s home (HCS model) Adult lives in apartment, condo or house (family rents or buys) for 1 to 3 residents; supports—live-in or come and go. 09/09/15 8 8
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Family consortium Small group of parents pool resources to manage a home for their children; group must be willing to work closely together May buy or rent a house/condo/apartment Must manage support services together May create more independence and lower costs through technology Well-documented at leapinfo.org---> look for The ILLP (The Innovative Independent Living Project)The Innovative Independent Living 9
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Tips for setting up parent-arranged residence
Learn about the options/restrictions with Medicaid Waivers for living arrangements Use technology to monitor safety, reduce care- giver role Put your child’s name on the waiting lists for low- income housing Talk to your child’s case manager, school transition team, LIDDA Talk to other parents who have experience 10
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Models for developing a home
Housing situation helps sons of UT faculty improve independence sons-of-ut-faculty-improve-independence New Independent Living Options for Those on the Autism Spectrum autism.html?pagewanted=1&_r=0&ref=general&src=me Beacon Hill Village &module_id=77064 Video on AIM care/five-who-care-ashley-sanchez/ Community for Permanent Supported Housing in DFW area
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Resources to help with developing a home
To find your local authority/LIDDA: dads.state.tx.us/contact/search.cfm The Arc of Texas webpage on housing issues and options for funding: thearc.org/what-we-do/public-policy/policy-issues/housing Texas Centers for Independent Living ilru.org Right column, Housing and Transportation, 2 guides with lots of detail. Texas Housing Counselor: Helping low-income Texans find a decent, affordable home texashousingcounselor.org/ Look at Section 811 Research on the web, for example, navigatelifetexas.org→transition-to- adulthood→housing (Really helpful website!! Click on the video.) Information and ways to make decisions: d_2013.pdf Housing and disability in Canada
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Texas Parent to Parent resources
How-to for Setting Up a Supported Residence, by TxP2P staff up_a_home.pdf Register with txp2p and sign up for Creative Housing listserv Annual Parent Conference includes panel on homes that parents have set up Pathways to Adulthood workshops around the state; register at txp2p.org for 1-1 assistance: or Toll Free: to discuss any transition issue
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