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The Bowel Screening Programme in Wales
Hayley Heard Head of Programme
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Bowel Cancer in Wales 2,200 people diagnosed every year in Wales
1,000 people die of the disease every year in Wales The third most common cancer in Wales
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Evidence to Support Bowel Screening
Bowel Screening can prevent premature death Pilots in England and Scotland Can be delivered in a population based screening programme 2005 National Screening Committee recommendation
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Bowel Screening Based on Faecal Occult Blood test
Colonoscopy or radiological investigations offered if FOBt positive Reduces mortality from bowel cancer by 15% Screening programmes aim to enable us to diagnose disease in people who have no signs or symptoms of the disease. This is achieved by offering people a test to sift out those who are likely to benefit from further tests or treatments to reduce the risk of the disease or its complications. Screening programmes reduce the risk of disease, but they can’t reduce that risk to nothing. Some people will still go on to develop the disease even if they’ve had a negative screening test, while others who are picked up by screening may either still die of the disease or would have been diagnosed and survived anyway whether they were screened or not. Before we embark on any screening programme we need to know that it will, overall, reduce the burden of the disease in question. Always important to keep in mind the fact that screening programmes are inviting very large numbers of healthy people and that we must do them as little harm as possible. And screening programmes do do harm- see slide. So as well as knowing that a screening programme will reduce the burden of the disease, we also need to be sure that it won’t do more harm than good by its impact on the vast majority of those being screened who are healthy.
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UK Perspective England Pilot sites 2006 - Geographical roll out 5 hubs
47 Screening centres live 60-69 years Planning to increase to 74 Self referrals Guaiac faecal occult blood test Accredited screening colonoscopists JAG approved units
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UK Perspective Scotland Pilot site 2007 - Geographical roll out 1 hub
Testing model - Guaiac and FIT 50-74 years No self referrals Devolved management model Screening colonoscopists not accredited Units not JAG approved
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UK Perspective Northern Ireland Project Phase
Due to implement December 2009 60-69 years olds –74year olds by 2013 Options appraisals: Laboratory Test I.T. system Local Assessment Centres Accreditation of Colonoscopists
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UK Perspective Wales February 2007 Ministerial Announcement
July 2007 PID approved October 2008 Programme implemented National coverage 1 hub Testing model - Guaiac and FIT 60-69 year olds – will increase to years No self referrals Screening colonoscopists assessed and approved Units not JAG approved
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Screening Services in Wales
Breast Test Wales Cervical Screening Wales Ante Natal Screening Wales Newborn Hearing Screening Wales Bowel Screening Wales
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Bowel Screening Wales Programme Aim
In the group of people invited for screening to reduce deaths from bowel cancer by 15%
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Phased Introduction by Age
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Project
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Baseline Review Expressions of interest requested
Local implementation teams Questionnaire Trust visits Suitability criteria Screening implementation plans
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Suitability Criteria Local Assessment Centres Service requirements
Environmental Equipment Training
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Local Assessment Centres
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Endoscopy Training and Capacity
Identify training requirements Assessment model Capacity for colonoscopy Referral pathways Protocols Specialist Screening Practitioners
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Screening Colonoscopist Assessment
Three phase approach: Pre assessment Individual learning plan and support Assessment: Directly Observed Procedures Multiple Choice Questions
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Specialist Screening Practitioners
Nurses 17 in Wales Employed by Trusts Induction programme Msc module Telephone assessment Results Hand over to MDT
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Information Technology
Options appraisal System design and development Specification, commissioning and procurement of software, hardware and telephone systems Oversee installation of IT system Disaster recovery plan
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Biochemistry Option appraisal for type of test Accommodation
Accreditation Staff: Job descriptions Recruitment Training
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The Test Testing Strategy Primary Test: Guaiac Secondary Test:
Immunochemical Put your details on the test kit Collect your bowel movement Collect second and third samples within 10 days Post the kit to Bowel Screening Wales
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Marketing and Communications
Corporate identity Identify and engage stakeholders Promote collaborative partnerships Website Develop communications strategy Develop public information Market programme Media training Launch
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Marketing Considerations
Aim for minimum 60% take up Initial target of age group Focus on Informing the target audience Generating a response to the screening invitation Overcome the key barrier of embarrassment About bowel cancer About bowels and the test For men in particular
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Invitations Letter and folder by post Every two years
Bowel Screening Explained Test kit Card sticks Return envelope Instructions Every two years Layered Information DVD
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Newspaper Advertisement
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Health Promotion and Community Information
Community Pharmacies GP Surgeries Tenovus shops Community events
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Professional Information
Developed for: Primary care Prison staff Other healthcare providers
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Quality Assurance Programme aim, remit and scope
Policy, Standards and Protocols Quality assurance manual National Service Document
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Operations and Administration
Procedures – call, recall, failsafe Liaise with IT design team Options appraisal for invitation Staff: Job descriptions Recruitment Training Helpline
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Programme Launch October 2008 Stakeholder conference 3 launch events
Media attention Local champions Welsh Assembly Government
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Results to date 22nd September 2009: 164,079 invitations
88,264 kits returned Uptake 60.2% Spoilt test kit 2% FOB positive 2.3%
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Results to Date 1139 participants deemed fit for colonoscopy
9.5% confirmed cancers 1.3% suspected 33% participants on surveillance 1.6% diagnosed with IBD
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Ongoing Challenges Uptake Assessment of Screening Colonoscopists
Increasing age range Surveillance programme
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Thank you
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