1. #EldersForum2018 #AgeingInCommon #NCF2018

2. #EldersForum2018 #AgeingInCommon #NCF2018
SKY 5 – Older people & learning disability
Jerry Ratcliffe, Chief Operating Officer, Surrey Choices &
Rachel Peacock, CEO, Making Space
#EldersForum #AgeingInCommon #NCF2018

3. “Ageing in Common” NCF Conference 18 April 2018
Older People and Learning Disability Workshop
Jerry Ratcliff, COO, Surrey Choices
Rachel Peacock CEO, Making Space
Supported by Peter Dillon, QA and Compliance Director, Making Space

4. Workshop objectives Today we will:
Introduce you to the work of Making Space and Surrey Choices
Share statistics about older people with learning disabilities and dementia
Share our experience of protecting the rights of this group of people in society
Signpost you to some resources for future reference
Facilitate an interactive and thought provoking open forum about what we have shared and what we can all be doing going forward

5. About Surrey Choices
Surrey Choices is a Local Authority Trading Company (LATC) wholly owned by Surrey County Council
We operate across Surrey and in surrounding areas
We support people with learning and physical disabilities, sensory impairments, autism and Asperger's Syndrome, older people, and those with dementia
We offer the following services to support people to learn, enjoy and achieve:
Home and Living – Shared Lives and Short Breaks
Activities – Activity Centres
Employment and Learning – EmployAbility and
Vocational Projects
C.375 staff, 1,500 customers
Over 20 sites across Surrey
Private clients as well as public sector commissioners from Health as well as LAs
Vocational projects – office projects, growth teams, woodwork, direction radio

6. Learning disability statistics
Approximately 1.5 million people in the UK have a learning disability
It is estimated that in 2011 in England in 2011, 1,191,000 people have a learning disability
This includes 905,000 adults aged 18+ (530,000 men and 375,000 women) (Source: People with Learning Disabilities in England 2011)
At the age of 60, over 50% of people with Down’s syndrome and 10-15% of people with other learning disabilities will have developed dementia compared to 2% of the general population

7. Support for customers with LD and dementia
Specialist Dementia service – The Cottage
Shared building with older person’s drop in service – Douglas Brunton Centre
Reminiscence
Memory books
Specialist training
Routine
Independence
The Cottage
A quieter, more-structured environment
Keep to routines
Use object reference
Simple decoration due to support for depth perception, coloured door frames to help people distinguish different room. Was designed with support from Karen Dodds, a national expert on learning disabilities - Consultant Clinical Psychologist, Vice Chair of the DCP Faculty for People with Intellectual Disabilities
As our services support a lot of people with dementia, there are a number of things that we ensure across all services when this is suspected/diagnosed:
Reminiscence sessions
Memory books – this includes pictures of activities undertaken while at Surrey Choices, but also key events in their home lif
Supporting people to maintain their independence as far as possible – keeping people’s routines helps with this.
Specialist training for staff

8. Tea and Memories
Offers older people the opportunity to come together and enjoy tea and cake.
Our Tea and Memories rooms are designed to replicate 1940s tea rooms, to inspire discussion, share memories and reminisce.
Special tea and memories events are held in partnership with Guildford Borough Council and Guildford Diocese.
Fantastic feedback and has really helped to reduce loneliness and isolation.
- Offered across a number of Surrey Choices services
- Transport is critical to ensure service is accessible
Good snippet to add:
The group has reunited two ladies in their 80s who had been school friends but had lost
contact with each other. The group was the first time the ladies had seen each other since
school and has allowed them to rekindle their friendship and share many happy memories.

9. Sensory activities
Support the emotional and physical wellbeing of people with dementia
Encourages people to engage with their environment
Isolation and confusion can deprive people of sensory interactions
Rebound therapy
We have a partnership with the Queen Elizabeth Park Care Home – they visit Lockwood to do “Moving and Grooving Sessions, including rebound therapy. Has the following benefits:
- Relaxation
- Social interaction
Sensory interaction
Gets body moving
Something a bit different from their normal day to day activities
Movement - Rebound therapy
Sensory story-telling
Music Garden
Snoezelens

10. Employment and community support
Surrey Choices EmployAbility supports c900 customers, some of whom have dementia
Structure of the workplace and employment
Support people to leave employment with dignity at the right time for them
Holistic support
Surrey Choices Shared Lives provides a safe and supportive home for people with a range of needs
Helps people to maintain their independence
Enables carers to have a break from their caring responsibilities
We have a great deal of experience in supporting people with dementia to continue in employment – this tends to be supporting people to continue in their employment, rather than to gain employment once they have a diagnosis.
Structure of workplace and employment can help to maintain customer’s health
Example – leaving with dignity – maintained customer with Dementia in employment, however eventually his dementia meant that he kept hiding things in the supermarket and all parties agreed it was time for him to move on. Badged as “retiring” as helped him to leave proudly still.
Often Dementia is misdiagnosed

11. About Making Space 1000 employees 35 years old 400 volunteers
We are a national charity and leading provider of health and social care services.
We have been helping adults with care and support needs, and their carers, to lead independent and fulfilling lives for more than 35 years.
Our high quality, person-centred services and accommodation support adults of all ages who are living with mental health conditions, learning disabilities, dementia and older people with age-related concerns.
We work closely with the people we support, their families and carers, our members and a range of partner organisations, to ensure we continuously deliver services that meet the needs of the people we support.
35 years old
1000 employees
supported over
200,000 individuals
400 volunteers

12. Dementia statistics 1 in every 14 of 815,827 people in people over the
age of 65 is living
with dementia
815,827 people in
the UK are living
with dementia
Projected
increase
of 40% over the
next 12 years
Approx. 856,700
people living with
dementia in the
UK in 2015
Represents 1 in
every 79 of the
entire UK population
(1.3%)
Source: Alzheimer’s Society (2014)

13. Younger people’s statisics
5% of 850,000 people living with dementia
42,325 people affected in UK (Dementia UK, 2nd Edition, 2014, Alzheimer’s Society)
People aged between years
Downs syndrome: 1 in 50 (30-39yrs), 1 in 10 (40-49yrs) and 1 in 3 in 50’s
1 in 10 people with a learning disability develop Alzheimer’s disease aged 50-65
6% of all people living with dementia among black and minority ethnic groups are young onset, compared to only 2% for the UK population as a whole

14. Making Space dementia law clinic
Over 120 families have been supported since beginning the pilot two years ago, from a one day a week clinic.
157 Students have been specially trained to take part in dementia clinic cases – started in 16/17.
130 Legal students have participated in Dementia Clinic cases in total.
8 of the over 120 families seen were lawyer only appointments, the rest were student led.
Dementia UK has provided a dedicated helpline nurse to develop the clinic

15. What Human & Legal Rights do we help with?
Advance Decisions (previously known as Advance Directives) to refuse treatment
Community Care Assessments
Continuing Healthcare
Court of Protection
Deprivation of Liberty Safeguards (DoLS)
Disputes of Best Interests for those who lack capacity
Disputes of Mental Capacity
Legal Power of Attorney (LPA)
Provision of care (in relation to care homes)
Trust and Inheritance probate

16. Co-producing the solution
“Where, after all, do universal human rights begin? In small places, close to home – so close and so small that they cannot be seen on any maps of the world. Yet they are the world of the individual person; the neighbourhood they lives in; the school or college they attends; the factory, farm or office where they works.
“ Such are the places where every man, woman and child seeks equal justice, equal opportunity, equal dignity without discrimination. Unless these rights have meaning there, they have little meaning anywhere. Without concerned citizen action to uphold them close to home, we shall look in vain for progress in the larger world.”
Eleanor Roosevelt, 10th anniversary of the Universal Declaration of Human Rights.

17. Resources for you
British Institute of learning disabilities (BILD) -
NICE - learning-disabilities
Foundation for People with Learning Disabilities
Centre for Ageing Research, Lancaster University ageing-research

18. Let’s not forget: Ageing well is the goal!

19. Open forum
How will we reduce the marginalisation of people living with a learning disability and dementia?
What are the barriers and enablers to make changes at scale and pace – for providers, commissioners, regulators etc?
How do we ensure “parity of esteem” in an age of austerity?

20. Thank you

21. #EldersForum2018 #AgeingInCommon #NCF2018