1. Dennis Deapen, DrPH NAACCR Annual Meeting Quebec City, June 23, 2010
Collection and Use of Industry and Occupation Data: Opportunities and Challenges
Dennis Deapen, DrPH
NAACCR Annual Meeting
Quebec City, June 23, 2010

2. Cancer Reporting in California Volume 1
“Because the identification of occupational cancer is an important aspect of cancer research, every effort should be made to record the occupation and the industry in which the patient works or worked, regardless of whether the patient was employed at the time of admission.”

3. Federal Public Law
Requires the collection of "information on the industry or occupation history of the individuals with the cancers, to the extent such information is available from the same record."

4. The Collection and Use of Occupation and Industry Data by NAACCR Member Registries*
Surveyed NAACCR member registries
41 of 53 (77%) responded
*Fulton JP, Chiaverini L, Roffers S, Curran D, Parrish P, Clutter G, Hall I, Jamison M, Newton C. In: Wu XC, et al. (eds). Cancer in North America, , Volume Three: NAACCR Combined Incidence. Springfield (IL): North American Association of Central Cancer Registries, April 2002, pp IV-1 - IV-8.

5. The Collection and Use of Occupation and Industry Data by NAACCR Member Registries

6. The Collection and Use of Occupation and Industry Data by NAACCR Member Registries

7. The Collection and Use of Occupation and Industry Data by NAACCR Member Registries
Barriers to Accuracy, Completeness and General Usefulness of I&O Data

8. The Collection and Use of Occupation and Industry Data by NAACCR Member Registries
Barriers to Accuracy, Completeness and General Usefulness of I&O Data (cont.)

9. The Collection and Use of Occupation and Industry Data by NAACCR Member Registries
Summary of Suggestions from Respondents for Improving the Accuracy, Completeness and General Usefulness of I/O Data

10. The Collection and Use of Occupation and Industry Data by NAACCR Member Registries
Authors’ recommendations
“Recruit national organizations to provide a strong rationale for complete and accurate I/O data collection in health care facilities, standards to do so, and an infrastructure to support and assure a strong I/O data product”
[commentary: very difficult/costly] OR
“Scrap the approach entirely and concentrate efforts on other means of I/O data collection”
[commentary: not compliant with Federal Law ]

11. Improving the Quality of Industry and Occupation Data at a Central Cancer Registry*
Reviewed 474 hospital records of 5,602 incident 2005 hospital-reported cases
Presented hospital registrar training and evaluated I/O completeness
*Armenti KR, Celaya MO, Cherala S, Riddle B, Schumacher PK and Rees RR. Am J Ind Med published online 6/1/10.

12. Improving the Quality of Industry and Occupation Data at a Central Cancer Registry
*Armenti KR, Celaya MO, Cherala S, Riddle B, Schumacher PK and Rees RR. Am J Ind Med published online 6/1/10.

13. Improving the Quality of Industry and Occupation Data at a Central Cancer Registry

14. Observations from the Los Angeles Cancer Surveillance Program
Registry O/I data are highly incomplete
Only 40% of LA registry cancer reports contain “useful” I/O data

15. Observations from the Los Angeles Cancer Surveillance Program
Registry O/I data provide similar findings to epidemiologic research
Colon cancer and physical activity
Registry data: sedentary/high PIR=1.6
Harvard health professionals study (n=47,723): high/low OR=0.5
Breast cancer in teachers
Registry data: SIR = 1.21
California Teachers Study (n=133,000): SIR = 1.22

16. Observations from the Los Angeles Cancer Surveillance Program
Registry O/I data are comparable to death certificate O/I data
Death certificate O/I data can be used to supplement missing registry data

17. National Institute for Occupational Safety and Health/California Cancer Registry Collaborative Project
Collection and Use of Industry and Occupation Data II: Overview and Goals, RD Cress, California Cancer Registry/Public Health Institute
Collection and Use of Industry and Occupation Data III: Cancer Surveillance Findings Among Construction Workers, GM Calvert, NIOSH/CDC
Collection and Use of Industry and Occupation Data IV: Development of Training Materials to Improve Occupational Data Collection in Cancer Registries, SE Luckhaupt, NIOSH/CDC