1. eHealth Ireland Lighthouse Project
Bipolar Disorder
eHealth Ireland Lighthouse Project
Improved management of Bipolar Disorder through use of information technologies in the context of an Electronic Patient Record
Dr Seamus Mac Suibhne - Consultant Psychiatrist, Rick Rossiter, Service User and Ambassador for See Change, Mel McIntyre and Dr Brona O’Neill, OpenApp IT Solutions

2. What is Bipolar Disorder
Bipolar disorder (BPD) is a common and severe mental condition.
Two types of recurrence, mania and depression.
One in a hundred Irish people are affected.
Early warning signs (EWS) interventions, targeted at improving the recognition and self-management are intended to train people to recognise early warning signs of recurrence and to avert adverse outcomes.
The Service User is a primary participant in management and early warning

3. Who gets bipolar disorder?
40,000 Irish people suffer from this illness
1 in 100 people.
It affects men and women equally.
It usually starts between puberty and the age of 40, but can begin at any age.
People from all walks of life, from presidents to porters, have had this illness.

4. While stigma still exists, attitudes are changing and the focus is changing from secrecy and shame to recovery and hope.
We need new methods to help engage with service users and their families and carers to leverage these changes

5. What do we need from IT?
Service user centric – longitudinal view of the service user across care settings
Collaboration in a virtual care environment facilitating communication across a range of provider networks
Clinicians, Carers, Service User, Family, Nurse, Primary Care and GP engagement, Allied Health Professional
Usability – needs to be easy to use by all
Accessibility – need access from inside and outside hospitals and facilities
Privacy and confidentiality in a sharing environment

6. Service User Centric Collaborative Environment

7. Service User/Carer Portal

8. Service user identified
Clinical Portal
Service user identified

9. Service User Centric Collaborative Environment

10. Bipolar Disorder Workshop Themes
Governance and ethics
Consent, usage and confidentiality limits
Service user perceptions and expectations of the EHR
General practice and nursing expectations of the EHR
IT challenges

11. Workshop Theme 1
Governance and ethics

12. Governance and ethics Who owns the project Who owns the data
Which bodies are responsible for Ethic approval
Ongoing Review – who monitors?

13. Consent, usage and confidentiality limits
Workshop Theme 2
Consent, usage and confidentiality limits

14. Consent, usage and confidentiality limits
What consent is required from the service user
Consent to treatment?
Active consent – multiple changing models of consent?
Consent to share data – anonymised/Identifiable ?
What happens if consent is withdrawn
Have we precedents for sharing access to confidential data
Who are the users?

15. expectations of the EHR
Workshop theme 3
Service user perceptions and
expectations of the EHR

16. Service User/Carer Portal

17. Service User Engagement
Push information for Learning to Patients
Push elements of patient health record from clinic
Care Plan, Medication, Quality of Life Charts etc
Gather data from Patient
Patient diary - moods, sleep - other
Treatment adherence - medication, consultations
Surveys and structured instruments - PROMS - Patient Reported Outcome Measures
Mobile Apps - leverage existing initiatives

18. General practice and nursing expectations of the EHR
Workshop theme 4
General practice and nursing expectations of the EHR

19. Service user identified
Clinical Portal
Service user identified

20. Service user identified
Clinical Portal
Service user identified
Only accessible to Clinical personnel – members of the care team and oversight
Role based access – from where ?
Flexible access to data collection forms – Assessments, Treatment orders, Quality of Life Surveys, Adverse Events
Access to Service User and Population reporting

21. Workshop theme 5
IT challenges

22. Service User Centric Collaborative Environment

23. CONSULTANT PSYCHIATRIST
Séamus Mac Suibhne
CONSULTANT PSYCHIATRIST
St Luke's Hospital
Kilkenny
Mel McIntyre
Dr Brona O'Neill
OpenApp
189 Parnell St, D1