1. #EldersForum2018 #AgeingInCommon #NCF2018

2. #EldersForum2018 #AgeingInCommon #NCF2018
Alzheimer’s International
Jeremy Hughes CBE, CEO, Alzheimer’s Society
Chief Kikelomo Laniyonu Edwards, CEO, Dementia Care Society of Nigeria
Datin Jacqueline WM WONG, Hon. Secretary Executive Committee, Alzheimer’s Disease Foundation, Malaysia
#EldersForum #AgeingInCommon #NCF2018

3. Jeremy Hughes, CEO Alzheimer’s Society, UK
Dementia Friendly Commonwealth
Jeremy Hughes, CEO Alzheimer’s Society, UK
Alzheimer’s Society is the UK’s leading dementia charity; providing support to people living with and affected by the condition, conducting research into the disease and striving to change society’s attitudes.
We are here for anyone affected by any form of dementia in England, Wales and Northern Ireland.

4. Dementia in the Commonwealth
50 million people live with dementia worldwide.
World’s 7th leading cause of death.
The majority (58%) of people with dementia live in low or middle income countries.
The cost to the global economy is US$1 trillion worldwide.
The Commonwealth encompasses many countries with high numbers of people living with dementia, such as India with 4.1 million
In the time it takes you to hear this sentence, a new person will have developed dementia. Around 50 million people live with dementia worldwide and this number is growing by nearly 10 million each year – the equivalent of a new case every 3 seconds. Dementia is listed by the World Health Organisation (WHO) as the world’s 7th leading cause of death.
An estimated 58% of people with dementia live in low or middle income countries. With numbers predicted to rise to million by 2050, the cost (US$1 trillion worldwide) will add significant financial strain to vulnerable countries’ budgets.
This means that if global dementia care were a country, it would be the 18th largest economy in the world. The annual costs exceed the market values of companies such as Apple (US $742 billion) and Google (US $368 billion).
In India around 4.1 million people are living with dementia, estimated by the Alzheimer’s and Related Disorders Society of India to be the second highest number of people with dementia per country, after China.
East Asia is the region with the most people living with dementia (9.8m), followed by Western Europe (7.5m), South Asia (5.1m) and North America (4.8m).
[Sources: Alzheimer's Disease International (2018); Alzheimer’s Research UK (2018)]

5. Commonwealth Countries with national dementia plans
Australia
Malta
United Kingdom
Countries developing national plans:
Bangladesh
Barbados
Canada
Kenya
Malaysia
Mauritius
Nigeria
Sri Lanka
Trinidad & Tobago
Just three out of 53 commonwealth countries already have national dementia plans, that’s just over 5%
The future however, is looking brighter, with nine further countries developing their own national dementia plans. Commonwealth countries from across world regions, cultures and income levels are facing up to the challenges dementia can bring and are taking steps to make life better for their citizens affected by the condition.
The Commonwealth is home to 2.4 billion people, about 31% of the world's population. We can make a huge difference to more than a third of the world’ population. If we share knowledge and technical cooperation, we can unite our member countries to support each other and achieve collective action on this global health priority.
[Sources: Alzheimer's Disease International (2018); the Commonwealth (2018)]

6. Common Issues
Across the globe dementia can bring stigma and social isolation.
94% of people living with dementia in low and middle income countries are cared for at home.
There are some regions where health and care systems often provide limited or no support to people living with dementia or to their families.
Dementia is typically associated with particularly intense needs for care, exceeding the demands associated with other conditions.
In many parts of the world, there is a growing awareness of dementia, but across the globe it remains the case that a diagnosis of dementia can bring with it stigma and social isolation. Today, we estimate that 94% of people living with dementia in low and middle income countries are cared for at home. These are regions where health and care systems often provide limited or no support to people living with dementia or to their families. Dementia is typically associated with particularly intense needs for care, exceeding the demands associated with other conditions.
Given the epidemic scale of dementia, with no known cure on the horizon, and with a global ageing population, we’re calling on governments and every part of society to play an active role in helping to create a world where people can enjoy a better quality of life today, and also help reduce the risk of dementia for future generations.
Source: Alzheimer’s Disease International (2018).
Image: Mkwiro village, on Wasini Island, Kenya (2016). This woman is cared for by her sister, who says she does not leave the family home.

7. Dementia & Ageing
Dementia is commonly misunderstood as a normal part of ageing
Age is the biggest risk factor for dementia.
In middle income Commonwealth countries, life expectancy and populations are increasing rapidly , leading to a greater number of people with dementia.
Older people living with dementia risk having their rights to autonomy and independence denied.
Too often dementia is misunderstood as a normal part of ageing, rather than the progressive and terminal medical condition that is it, and the leading cause of death and disability.
However it should be noted that age is the biggest risk factor for dementia.
In upper middle income countries, life expectancy and populations are increasing, leading to a greater number of people with dementia. High income countries have broadly already experienced the increases in health and population that upper middle income countries are undergoing and so prevalence is high but will not rise as rapidly.
Older people living with dementia risk having their rights to autonomy and independence denied.
Source: Alzheimer’s Disease International (2018); HelpAge (2018).
Image: Older man living with advanced dementia at Silver Amore facility, a live-in facility dedicated to those with dementia, Mumbai, India (2017).

8. 29% The need for change in the UK 850,000 people living with dementia
of people living with dementia said they did not feel part of their community
In 2015 Alzheimer’s Society report found that 29% of people living with dementia did not feel part of their community. Isolation and loneliness is a huge problem and we simply do not believe that this is good enough. This is why we are absolutely committed to help change this.
Dementia Friends and Dementia Friendly Communities are our initiatives to drive this change and the two work closely together to ensure that we create meaningful change for people living with dementia on the ground.
Source: Dementia 2015: Aiming higher to transform lives, Alzheimer’s Society, 2015

9. Dementia Friends & Dementia Friendly Communities
2.4 million Dementia Friends
336 Dementia Friendly Communities in England and Wales
Our Dementia Friends programme helps raise understanding on an individual level, and encourage social action
The Dementia Friendly Communities programme seeks to ensure that people with dementia feel understood, valued and able to contribute to their community

10. What is a Dementia Friendly Community
A city, town or village where people with dementia are understood, respected and supported, and confident they can contribute to community life.
A dementia-friendly community is a city, town or village where people with dementia are understood, respected, supported, and confident they can contribute to community life.
In a dementia-friendly community people will be aware of and understand dementia, and chances are they’ll be Dementia Friends. Communities take ownership and drive forward their own change to ensure people with dementia feel included and involved in their communities, and have choice and control over their day-to-day lives.

11. Dementia Friendly Communities

12. Prime Minister’s Champion Group
PMCG Steering Group
Home services
Assistive Technologies
Housing
Energy, Water and telephony
Entertainment, Leisure and Recreation
Maintaining Personal Wellbeing
Sport and leisure
Arts
Young People
Schools
Universities
Youth Groups
Communities
Faith Groups
Rural Communities –
Financial Services
Financial Services –
Insurance
Legal
Transport
Rail
Air Transport
Businesses and Organisations
Dementia Friendly Employers
Dementia Friendly Retail
Public Services
Emergency Services –
Local Authority Services
GP practices
The Prime Minister’s Champion Group was established to develop dementia-friendly communities across industries and provide expertise on how to do this. You can see the variety of sectors involved in this work on screen.

13. Dementia Friendly Organisations
Guidance created for:
Entertainment, Leisure and recreation
For faith and communities
For financial services, legal and insurance
For housing, utilities and technology
For businesses and retail
For transport
Coming soon
Emergency Services Guide
The guidance and charters we’ve created reflect the main dementia-friendly action areas and were developed to empower and equip industries to become dementia-friendly and inclusive. For example the Dementia-Friendly Arts and Cinema guide showcases how theatres, museums and cinemas can be more accessible for people living with dementia.
For more information:

14. Dementia Friendly Communities: Recognition Process
In order for us to ensure that communities are able to work towards a common and consistent vision, we have developed a Recognition Process that publicly recognises communities for their work towards becoming dementia-friendly. Criteria were built around what people living with dementia consider important and ensures that we are working towards meaningful change. Communities who apply for recognition can use our ‘working towards becoming dementia friendly’ logo and are asked to submit an annual self-assessment to report on progress.

15. Creating a Dementia Friendly Generation
Within our wider dementia-friendly work, we are also committed to building a dementia-friendly generation. Dementia can create challenging situations for families and it is important that young people are given the right information to understand these changes in their loved ones.
Alzheimer’s Society has developed a number of resources to enable young people to learn about dementia in a supportive environment such as at school or within a youth group. In addition to this, our A Million Hands partnership with the Scouts Association has seen 47,000 Scouts choose to support dementia-friendly activity in their communities.
We have recently developed a new animation called Memories with Grandma which is an engaging tool to raise awareness:
The animation’s primary audience is young people between 7 and 11 years old.
Grandma Mary is voiced by Dianne, one of our fantastic supporters who is living with dementia.
There are two versions of the animation: one for the UK and one for use internationally. The international version can be viewed with subtitles in four languages. This will help us to raise understanding of dementia far and wide
We feel that initiatives of this kind are important as they inspire the next generation of carers, scientists, policy-makers and society in general to continue fighting this condition.
For more information:

16. Changing the way nations think, act and talk about dementia
Dementia Friends
Changing the way nations think, act and talk about dementia
Dementia Friends is the UK’s largest social action movement changing the way the nation thinks, acts and talks about dementia. It is about learning more about the condition and the small ways we can all help. The programme is delivered through three routes.

17. Dementia Friends Five Key Messages
Dementia is not a natural part of ageing.
Dementia is caused by diseases of the brain.
Dementia is not just about losing your memory.
There is more to a person than the dementia.
It is possible to live well with dementia.
The Dementia Friends five key messages are designed to address the stigma that exists around dementia. They encourage people to look beyond the disease and appreciate the person for who they are and what they are still capable of.
Whatever route people use, we ask all Dementia Friends to commit to a dementia-friendly action; this can range from wearing the Dementia Friends badge, being more patient when out and about in the community, continuing to visit a loved one living with dementia or getting involved in campaigns that want to improve the lives of people with the condition. It is important to note that Dementia Friends is not a be-friending service.
Rather, through this action element, Dementia Friends is promoting the creation of communities in which people living with and affected by dementia are understood, supported and valued.
To ensure that we are able to raise awareness of dementia as widely as possible, we have adapted the Information Session for different audiences.
For more information:

18. Dementia Friends Highlights
Over 2.4 million Dementia Friends
We are very proud that the Dementia Friends programme has now reached over 2.4 million Dementia Friends in England and Wales since its launch in It has shown to play a huge part in supporting a societal shift towards acceptance and inclusion of people affected by dementia. Our next goal is to create 4 million Dementia Friends by the end of 2020.
We conduct an annual Dementia Friends survey which helps us to understand the impact of the programme. You can see a few of the results from the 2016 survey on screen, including 86% of people feeling that they have a better understanding of dementia because of Dementia Friends.
Source: 2016 Dementia Friends impact survey

19. Global Dementia Friends
Given the success of the Dementia Friends model in the UK, Alzheimer’s Society has committed to support other countries to develop and deliver their own Dementia Friends programmes or similar initiatives. So far there are 36 countries involved in the Global Dementia Friends Network from across the world. The Network shares learnings and best practice, allowing us to reach out to and raise awareness of dementia as widely as possible at the global scale.
The map behind me shows just a selection of the countries involved with Dementia Friends, ranging from Canada and Denmark to Costa Rica, Nigeria and Hong Kong. There are now over 14 million Dementia Friends worldwide - we truly are an international movement working together to combat this global challenge.

20. Dementia Friends in the commonwealth
New Zealand
Mauritius
Pakistan
Australia
Nigeria
Bangladesh
Zambia
Canada
Dementia Friends programmes launched in the commonwealth:
Canada – launched in Have reached 1, 058,169 dementia friends
Singapore – launched in Have reached over 19,000 dementia friends
Nigeria – launched in Have reached over 80,000 dementia friends
Pakistan – launched this year!
Dementia Friends programmes launching very soon:
Australia, New Zealand, Bangladesh and Zambia
Dementia Friends programmes in development:
Mauritius, Dominica and South Africa
Dominica
South Africa
Singapore

21. Spotlight on Nigeria
In January this year, Dementia Friends Nigeria celebrated their 2nd year anniversary. Dorcas Ajiboye (Director Ministry of Labour and Employment) hosted this event bringing together representatives from all ministries within the federation as well as other stakeholders.
A big congratulations to Kiki Edwards (who I’m pleased to speak alongside today) and Sussan Onuoha (Dementia Friends Nigeria Abuja Branch Co-ordinator).
The Dementia Friends programme was launched in Nigeria on 28 January 2016 by Dementia Nigeria and with support and guidance from Alzheimer’s Society. Using the UK’s Dementia Friends programme outline and materials, adaptations were made to roll the programme out to change the way the nation thinks, acts and talks about the condition. In the space of a few months there were over 21 Dementia Friends Champions in 19 of the 36 states.
Each Champion was given a target of creating 100 Dementia Friends, and Information Sessions were delivered in schools, hospitals, places of worship and elsewhere within the villages and towns. Through this word of mouth people’s perceptions and attitudes towards dementia have begun to change, and over 80,000 people have now become Dementia Friends.
The most popular strategy employed by Dementia Friends Nigeria was to get individual village Chiefs and elders involved, who would then cascade the learning to the lower Chiefs and then to individual households within their communities. Getting key respected members of the community engaged in the programme really helped to give the Dementia Friends messages some weight.
Since January 2016 the Nigeria Dementia Friends programme has gone from strength to strength. A huge success is the recent appointment of His Imperial Majesty, Oba Saliu Olasupo Adetunji, The Olubadan of Ibadanland, as the Grand Patron of Dementia Friends Nigeria.
‘Now we have people within those communities talking openly about their family members who are living with dementia! They are no longer ashamed. They no longer feel the need to hide’

22. Spotlight on Pakistan
Alzheimer’s Pakistan launched Dementia Friends on 7 March this year!
The launching Seminar was attended by a large number of students and faculty of the Lahore Garrison University.
The Chief Guest, Maj Gen (R) Obaid Bin Zakria, Vice Chancellor, Lahore Garrison University said that he has personally experienced what happens when a loved one has dementia. Caring for a person with dementia is extremely difficult as it affects the caregiver at different levels i.e. emotional, physical, and financial. The Vice Chancellor said that the Lahore Garrison University shall fully collaborate with Alzheimer’s Pakstan’s on Dementia Friends and the students from different departments shall also be given assignments and projects on dementia so that the awareness of this condition is also raised in the community.
They are developing materials at the moment with our support.

23. WHO Global Dementia Action Plan
Global action plan on the public health response to dementia 2017 – 2025.
Unanimously adopted by Member States in May 2017.
7 areas for action (dementia awareness, risk reduction, diagnosis, care and treatment, support for care partners and research).
Monitored by WHO Global Dementia Observatory
Target 2.2: 50% of countries will have at least one dementia-friendly initiative to foster a dementia-inclusive society by 2025.
The World Health Organisation – has developed and worked with countries around the world to create a Global Dementia Action Plan unanimously adopted by Member States in May 2017, in response to the growing public health challenge that dementia presents around the world.
The plan urges a greater commitment by governments worldwide to develop and improve national dementia plans, care and support for people with dementia, recommending global targets and activity under seven areas for action (dementia awareness, risk reduction, diagnosis, care and treatment, support for care partners and research).
Action area 2 on Dementia awareness and friendliness sets global targets: [2.1] 100% of countries will have at least one functioning public-awareness campaign on dementia to foster a dementia-inclusive society by 2025 & [2.2]: 50% of countries will have at least one dementia-friendly initiative to foster a dementia-inclusive society by 2025.].
WHO is currently developing a global toolkit on dementia-friendly initiatives (DFIs) as technical support to Member States. Alzheimer’s Society is a lead partner in the development of this resource alongside the governments of the UK and Japan.
At Alzheimer's Society we are already working with more than 35 countries to share our learning and support the development of national Dementia Friends programmes. We would be pleased to work with many more of your countries to create a Dementia Friendly Commonwealth - meeting the WHO Global Action Plan target, and supporting the millions of people living with dementia throughout the Commonwealth.

24. Global Dementia Friends Ambassador
And finally, before I hand over to colleagues from Nigeria and Malaysia, I'd like to share with you a special message from our Global Dementia Friends Ambassador, the actress Carey Mulligan.
[Carey Mulligan transcript:]
It’s time to recognise that dementia is not a natural part of ageing, it’s a medical condition that can and will be tackled with collective action. Too often older people face discrimination and their urgent needs are unmet due to an ageist society. Today we must consider how we can support older persons with dementia to live well and recognise their contributions and potential.
Dementia is one of the most significant health challenges we face globally. The condition affects 50 million people worldwide, with a new case occurring every 3 seconds. The World Health Organisation lists dementia as the 7th leading cause of death worldwide and in 2018 it will become a $1 trillion disease.
Yet global diagnosis rates are low, people are receiving sub-standard or no care and stigma remains rife. In a significant number of countries there is not even a word for dementia.
By 2050, 2 billion people will be 60 or older – for the first time in history there will be more persons over 60 than children in the world. Age is one of the biggest risk factors for developing dementia and rates are rising fastest in lower and middle income countries. Despite an ageing global population most countries are not prepared for the social and economic cost of the impending dementia crisis.
People living with dementia and their families frequently face stigma and discrimination and in some parts of the world can even face violence. Older people living with dementia can be doubly discriminated against due to their age and medical condition. We need to create communities which support and enable people affected by dementia to continue doing the things they want to do.
Having experienced first-hand how devastating it can be, I think it is incredibly important that we unite against dementia and work together to create a lasting and positive change.

25. Presentation title 14/16pt
Thank you
A lot of work needs to be done to support a societal shift towards acceptance and inclusion of people affected by dementia, but together I strongly believe that we can make a difference
Thank you.

26. #EldersForum2018 #AgeingInCommon #NCF2018