1. National Institute of Biomedical Imaging and Bioengineering
A Case for Data Sharing
Belinda Seto, Ph.D.
Deputy Director
National Institute of Biomedical Imaging and Bioengineering

2. Case Study
Healthy 62 year-old woman with no history of smoking, drinking or drug abuse experienced abdominal pain. Believed it was an ulcer and treated with medication. Her symptoms got worse and were accompanied by a 15 lb weight loss. Sent to a community radiology clinic for an abdominal CT scan. Scan revealed a mass in the pancreas and others in the liver.

3. Case Study (con’t)
Sent home with a CD of the image and was referred to a hospital for further evaluation. Physicians at the hospital were not able to read the CD. Returned to the radiology clinic, provided another CD. Returned to the hospital and this time the CD was readable.

4. Case Study
Issues:
Transmission and sharing of patient image data between the clinic and the hospital
Clinical decision support in health information system
Optimizing procedure ordering

5. Questions
What role does health information exchange play in this patient’s care?
How might image data sharing be implemented?
Broadly, how might clinical decision support systems improve health care value?

6. Data Sharing to Support Better Decisions

7. President Obama’s Health IT Vision
A secure, nationwide, interoperable health information infrastructure that will connect providers, consumers, and others involved in supporting health and healthcare

8. Nationwide Health Information Network
Improve coordination of care across providers
Ensure that consumers’ health information is secure and confidential
Enable consumers control and decision making
Reduce risks from medical errors
Enable evidence-based decision support systems
Lower health care costs

13. Image Data Sharing: NIBIB Activities
Contract awarded to Radiological Society of North America: Image Sharing Network, PI: Dr. David Mendelson
Grant awarded to Wake Forest University
Grant awarded to University of Alabama

14. Wake Forest Project
Develop a patient controlled platform for medical image sharing
Test a model using electronic keys to access data
Integrate image data with electronic health records
Include imaging facilities in rural and urban southeast U.S.

15. Alabama Project
Establish regional health image exchange system among hospitals in Alabama
Design a web accessible point for physicians and patients to view images
Adopt standards of National Health Information networks, 2007
Initially focusing on trauma patients
Scalable

16. Health Information Technology: Integration is the Key

17. Health Information Technology (HIT): the Means toward Better Care
“HIT is not the end itself but a means to improving quality of health care”, Dr. David Blumenthal
Data is the fuel that drives HIT

18. Decision Support in Health Information Systems
Patient data needs to be integrated and assessed to provide real-time, point-of-care information regarding the right care
Improves clinical decision support with enriched data
Develop algorithms to use comparative effectiveness findings to optimize outcomes

19. Comparative Effectiveness Research
Purpose: to improve health outcomes by providing evidenced-based information to patients and providers
Mandate: to conduct study of outcomes and to derive conclusions to inform medical choices/decisions.