1. Digitalization and the Integration of Health and Social Welfare Services Client Data:
The Future of Health and Social Welfare Services and the related Legal, Economic and Technical Challenges
Under-Secretary of State
Dr. Tuomas Pöysti

2. Digitalisation as the opportunity and challenge of the health care and social welfare
Society and Government will be placed on ICT-based platforms - digital society and information government
Intelligent information systems with algorithms - new efficiencies in health care and social welfare services
learning machines
automated, embedded decision-support and steering

3. Strategic vision of genomic data, ICT and virtualisation
Virtual clinic -concept
new way of providing services
intelligent systems analysing patient data - connection with other data - ubiquitous welfare apps.
virtual health check
Genomic data
genome information at the service; health care and directo-to-consumer -market; risk-profiling
national genome strategy
combination of genome data to healt information
Biobanks and development communities as drivers for change

4. Benefits of effective use of genomic data

5. Genomic data - objectives

6. Genomic data and ICT Economic possibilities
welfare business
Access to business and innovation ecosystems
Improvement of the quality and efficiency of health care 
risk profiling and personalisation of service
Potential growth business

7. Social welfare and health data to effective use
National service infrastructure and national ICT services for social welfare and health care
messsaging based national archive and data repository
’’closed cloud’’
Access to own data and active use of the data

8. Finnish Social Welfare and Health Services Reform - main principles
Improvement of cost-effectiveness => reduction sustainability gap
Comprehensive customer-oriented integration of services
combination of general practitioner’s and specialised services
combination of socia welfare and health services
Administrative re-organisation - bigger providers of public services
autonomous administrative regions
Wide freedom of choise for individuals
Wide use of competition and competitive arrangements
Multiple service-producers

9. New administrative structures
CENTRAL GOVERNMENT
Legislation, Financing and Steering
18 AUTONOMOUS REGIONS ORGANISING SOCIAL WELFARE AND HEALTH SERVICES IN THE FORM OF 15 REGIONS
Joint suppurt services - common back office
Common ict
LOCAL GOVERNMENT
Promotion of welfare and health

10. Informational conditions for wide freedom of choise and competion
Competition and use of competitive pressures and bench-marking
comparability of information: costs, quality, effectiveness
asymmetric information and market failures
systematic comparison
obligation to the private service providers to give comparable information
Wise use of freedom of choise
access to information
comparability of information
significance of signals; experience commodity and management of expectations and uncertainties in patient/client relationships
Full integration and fluid flow of customer data in treatment / service relations

11. Legal challenges 1
Integration of the protection of personal data to the comprensive service integration in a multi-producer environment
need to know - authetication of the legitimate users
flow of data vs. data portability
MyData and self-care/ access to own data (virtual clinic)
Consent management system
danger: trivialisation
Act on Electronic Patient and Customer Data in Social Welfare and Health care in Finland
Biobank Act

12. Legal challenges 2
Risk profiling and personalisation with genomic & other health data
data minimality -principle
excavation of new meanings for data in a given context
capacity for ubiquitoius surveillance
Informational rights
access to own data
right to complement own data
right to self-determination - control of data and its usage
right to knowledge and background knowledge
right to get advice on the significance f genomic data and alghoritms

13. Legal challenges 3 Assumed consent and default position
Act on electronic patient and customer data in social welfare and health care in Finland
Concept of singe consent
Purpose definitions
limitation in the Act on Biobanks - health care and related research only
Data controller
who shall be the controller
joint controllership
Inter-operability
standardisation
audit
Ethics and fairness of processing
Act on Biobanks
Relationship between private and public sector acts / general and specific acts

14. Conclusions
Inter-action with intelligent systems will be part of the future health care and socia welfare
regulation of human - intelligent machine inter-action
Structuring of the documents, legal management of meta-data and information processes increasingly important for fundamental rights
OwnData / MyData to the systems created data an issue - data portability already an old concept
Convergence of data categories and new ways of combination - genomic and big data together
Government is a platform of ICT
Governance and government is increasingly risk magement

15. Additional information www. stm. fi/sote-uudistus www. vm. fi Dr
Additional information Dr. Tuomas Pöysti Under-Secretary of State Government of Finland firstname.lastname at stm.fi