1. Local networking sessions
Wales

2. WELCOME
Wales
Anna Tee
Partnership Manager
November 2017

3. Group introductions
Who’s who in Macmillan Wales ?
Macmillan Wales Geographic Strategy
Macmillan Framework for Cancer in primary care programme
End of Life Care developments in Wales
Key messages from the Wales Cancer Patient Experience Survey
How L&D is being used to support professionals.
Learn and share discussion
How do you influence people in your role?
How do you take forward education in your role?

7. Strategic Priorities (SP):-
SP1 - Engage with key stakeholder groups to understand their needs
SP 2 - Improve the experience for people seeking help for signs and symptoms of cancer
SP 3 - Support the delivery of consistent person-centred care from diagnosis through active treatment
SP4 - Support the delivery of person centred care so that people live well with and beyond cancer
SP5 - Improve palliative and end of life care

8. Macmillan Framework for Cancer
in Primary Care programme

9. Macmillan Framework for Cancer in Primary Care programme
Programme Team
GP and Nurse Lead for Wales
7 Cancer leads in Health boards & Velindre
3 Regional Nurse leads
Programme Manager, Comms Manager & Administrator
Current work
eCDS tools
Pathway development
Vague symptom clinics
Cancer team peer review
Gwella website development
Cluster GP Facilitators recruitment x12
Cancer Delivery Plan Refresh 2016

10. Palliative Care & End of Life Delivery Plan refresh March 2017-2020
Early identification
Widening discussion about death - Bwy nawr
Advance care planning
Care decisions documentation
Avoiding admission
Children and Young people
Education
Macmillan EoL Care Priorities
Advance Care Planning Nurses
GP Facilitators
Building on the Best Programme

11. Advance Care Planning http://advancecareplan.org.uk

13. Wales Cancer Patient Experience Survey 2017
11,000 patients who had cancer treatment in June – Dec surveyed
6,700 responded
Data collected July-Oct 2016
Data available all Wales & by Health board
Having a CNS improved care
Limited variation by HB but C&V generally scored better, BCUHB & HDUHB scored lower
Breast, head & neck, prostate & skin cancers more positive
Sarcoma, urological, brain/CNS, & blood cancers less positive
Lung cancer experience improved
93% of patients gave a rating of 7/10 or above about their overall care
Wales Cancer Patient Experience Survey. July Picker Institute Europe

14. Primary Care results 61% referred after 2 consultations
6% said they had seen their GP five times or more prior to being referred to hospital.
20% felt symptoms not taken seriously enough
25% unaware their symptoms were serious
44% not enough help & support from my GP on leaving hospital
40% not enough help & support from health or SS leaving hospital
91% GP had enough information to care for me

15. Seriously?
9% said that their GP did not taken symptoms seriously and 12% said they took them seriously only “to some extent”.
“My GP would not have referred me to the specialist if I hadn't pushed. Even at my lowest points, the GP still made me wait days to see them.” – Female, 49
“GPs often too reluctant and too slow to refer patients for cancer tests despite showing probable symptoms. This needs to be improved & GP's need to refer patients to a hospital for checks if they show any cancer like symptoms. In my case I was told that my tumour was non-malignant by my GP despite having a hard lump which turned out to be breast cancer.” – Female, 76
Wales Cancer Patient Experience Survey. July Picker Institute Europe

16. Unmet needs
When patients returned home after episodes of care, their needs for support were not always met.
Many remarked that there was too long a delay before any follow-up appointments, with some indicating that this could leave people feeling isolated and alone. Mental health was an issue for many.
“The aftercare e.g. mental health. Cancer messes with your state of mind. When treatment ended I seemed to be in limbo and still am.” – Male, 72
I felt that some nurses on team should have more cancer related knowledge in order to deal with patients going through this.” – Female, 48
Wales Cancer Patient Experience Survey. July Picker Institute Europe

17. How L&D is being used to support professionals
UKO prospectus
Learn Zone and Be.Mac
Local set course offer
Educational Grants – Individual and Group
Courses for PABC
Bespoke events and specialist training courses
An “onsite” offer – courses that can be ordered in to be delivered onsite with audiences of a Mac professionals choosing.

18. Influencing experiences
Educational role and programme