1. NT RHD CONTROL PROGRAM “the ins and outs” Welcome
Marea Fittock
October 2016
Welcome
Thank you for the opportunity to present here today.
I acknowledge the traditional owners on whose land we are occupying today

2. WHAT DO WE DO NT Overview NT RHD Register Secondary Prophylaxis
Advocacy role
Clinical Support
Networking
Today I am will provide a brief overview of the what the RHD control Program primarily does.

3. NT RHD DISRIBUTION 2,704 people on the NT RHD Register
Number & Distribution of people on the NT ARF/RHD Register
Number of cases
2,704 people on the NT RHD Register
1,537 people on 3-4 weekly BPG injections
1,512 people diagnosis of ARF
1,769 people diagnosis of RHD
Refer to distribution numbers on ® hand side.

4. NT ARF Data : 2000 – 2016 current More informed clinicians
Broader distribution of educating clinicians
Raising of the profile through health service related research on SP

5. RHD REGISTER Data entry Data cleansing Data analysis Register up-grade
Historical data
ARF Notification process / NT Surveillance
National reporting

6. Secondary Prophylaxis
Data entry
Automated reports
Quarterly reports to all health services
Care Planning
Recalls
Outreach

7. Secondary Prophylaxis
62% are receiving over 80% of their injections.
The graphs is demonstrating that in the NT all health services are increasing their administration their 4 weekly BPG

8. Advocacy Role Patient / Health Staff Education Health service support
Hospital support
NT Cardiac Services support
PIRS systems support
Research support
205 Patient education sessions across the NT to date; this applies to hospital admissions and regionally
157 health related staff education session during 2015
Support health services with care planning for follow up and SP
Clinician led event
RHD is a notifiable condition in WA and SA; NSW
Paediatric Cardiology recall reports
Adult Cardiology recall reports
Outreach
Triaging patients
Regular meetings
Telephone support
Hospital bed lists
Paediatric ward bed lists
Follow up patients on the ward
Note daily hospital comments re patient
Complete ARF Notification forms
Liaise with supporting medical team
Liaise with the patient’s residential community health service
Provide education and health promotional material

9. Time commitment (FTE) required to manage ARF/RHD in the NT
1 hour per month per
person requiring BPG
15 minutes per month per
patient not requiring BPG
Total time per week = 436hrs
Number & Distribution of people on the NT ARF/RHD Register
Time commitment (FTE) required to manage ARF/RHD in the NT
FTE required
This map is looking at another way of representing the burden of disease in the NT instead of representing total number of cases we are representing the data by the number of work hours it takes to manage the cases.
This is not scientific but is a general assessment and estimation of committed hours to administer and monitor the ARF / RHD patients.
As per the number of patients for each community; allocation of 1 hour for those requiring BPG and 15 minutes for those not requiring BPG. That calculation gave a total number of hours per month which then converted total number of hours per month to be represented by FTE.
Numbers in community
Time has been reallocated to FTE positions
.2 is one day per week
.4 FTE is 2 days per week
1 FTE is 36 hours (5 days per week)
Grey dots means to manage would need 1 clinical staff member 1 day per week to manage all the RHD patients on the register for that community.
Light green means = 1 clinical staff member 2 days per week
+ X1 for 3 days per week
Dark green: > than 1 staff member to administer and monitor all RHD patients on the register
All we are doing is showing a different way to manage the clinical work load for ARF & RHD patients as per the register

10. NETWORKING NT Primary Health Services
Aboriginal Medical Services Alliance of the NT
NT Aboriginal Health Key Performance Indicators
Continuous Quality Improvement processes
Cardiac Clinical Network NT
RHDA
Other state jurisdictions

11. Questions
Thank you to the NT RHD Control Program team; CDC and Vicki Kraus for on-going support with additional staffing; Christian James and also extend acknowledgement broadly to all health services both NTG and non-NTG; and AMSANT; Primary Health Branch and Primary Health Outreach