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Core Curriculum Module 6 Communication
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Section I: Overview of Communication
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Communication Terminal illness is a family experience
Imparting information, so individuals may make informed decisions Requires interdisciplinary collaboration
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Three Journeys Affected by Communication (or Lack Thereof)
Isolated Journey Absence of hospice/palliative care Rescued Journey Rescue from isolated journey through referral to hospice/palliative care Comforted Journey Palliative care, later to hospice Wittenberg-Lyles et al., 2011
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Patient/Family Expectations
Build rapport Be honest Elicit values and goals Keep family and patient informed Communicate with the team Take time to listen Provide safe space Coyne et al., 2009; Dahlin & Wittenberg, 2015; Seccareccia et al., 2015; Wittenberg-Lyles et al., 2010a
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Communication with Patient/Family
Recognize individuality Deconstruction Your role Understanding life prior to illness Externalization
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Communication with Patients/Family (cont.)
Ask how much patient/family want to know Initiate family meetings Be aware that illness can strengthen or weaken relationships Base communication with children on developmental age
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Barriers to Communication
Fear of mortality Lack of experience Avoidance of emotion Insensitivity Sense of guilt Desire to maintain hope
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Barriers to Communication (cont.)
Fear of not knowing Disagreement with decisions Lack of understanding culture or goals Role relationships Personal grief issues Ethical concerns
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Barriers to Communication Regarding Prognosis
Perceived risk Disconnect Uncertainty Discomfort McLennon et al., 2013; Wittenberg-Lyles et al., 2010a
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Myths of Communication
Communication is deliberate Words mean the same to sender/receiver Verbal communication is primary Communication is one way Can’t give too much information
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Caregiver Assessment Questions
What else is going on? What is it like at home? Is the care you are providing interfering with your work? Financial needs? Who holds the insurance? What is most important/meaningful to you? Fears/worries? What do you hope for your family? What kinds of needs do you have? Support systems? Dahlin & Wittenberg, 2015; Wittenberg-Lyles et al., 2010a
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Verbal and Non-Verbal Communication
Includes body language, eye contact, gestures, tone of voice 80% of communication is nonverbal Boreale & Richardson, 2011; Dahlin & Wittenberg, 2015; Wittenberg-Lyles et al., 2013
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Cultural Considerations
Culture pervades/invades human behavior Hierarchical structure Cultural humility
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Guidelines for Encouraging Conversation
Setting the right atmosphere Does the patient/family want to talk? Attentive listening Dahlin & Wittenberg, 2015
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Attentive Listening Encourage them to talk Be silent
Share your feelings Avoid misunderstandings Don’t change the subject Take your time in giving advice Encourage reminiscing Create legacies Dahlin & Wittenberg, 2015
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Mindful Presence Requires: Acknowledging vulnerability Intuition
Empathy Being in the moment Serenity and silence Wittenberg-Lyles et al., 2013
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Listening Exercise
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