1. By Michelle Liu, Senior data analyst interRAI
People with dementia living in the community – what can interRAI data tell us?
By Michelle Liu, Senior data analyst interRAI

2. What is interRAI
interRAI = international Resident Assessment Instrument
Comprehensive clinical assessment instruments
Best practice approach to assessing people’s needs
Standardised and designed for specific groups
Common language, common measures, common concepts

3. interRAI assessments used in New Zealand
In the community:
Contact Assessment (CA), a basic screening assessment for people living in the community
Community Health Assessment (CHA) and Home Care Assessment (HC) for planning care and services in home and community-based settings
Palliative Care Assessment (PC) for community-based older adults where a palliative care focus is required.
In aged residential care:
Long Term Care Facilities Assessment (LTCF) for evaluating the needs, strengths and preferences of those in aged residential care.

4. Research data repository
Collect once – use many times
Research data repository
General information
Services
Policy
Legal aspects
Technical standards
Metadata standards
Quality standards

5. What interRAI tells us about people with dementia living in the community
All the data included in this presentation is 2017/18 HC assessments unless specify otherwise.
Assessment count = 37176

6. What we are looking at
Home Care assessments completed in 2017/18
Assessments not clients
Demographic characteristics
Outcome measures
Outcome scales
Clinical Assessment Protocols (CAPs)
Data presented here are from Home Care assessments completed between July 2017 to June (n = 37,176)
Counts and percentage of assessment rather than clients – because one person could have multiple assessments in a year which affects the results.
Automatically generated using built in algorithms in the assessment
Outcome measures are usually used to evaluate an older person’s current clinical and functional status.
A triggered CAP is usually an opportunity to facilitate improvement, slow rate of decline or alleviate symptoms.

7. Demographic characteristics
One in four Home Care clients had a diagnosis of Alzheimer’s disease and/or other type of dementia
44% of diagnosed Home Care clients are between 75 to 84 years of age
Men were 12.5% more likely to be diagnosed with dementia (age adjusted)
Māori (31%) and Pacific people (35%) are more likely to be diagnosed with dementia (age adjusted)

8. Cognitive performance Scales
This scale combines information on:
daily decision making
short term memory
making self understood
eating performance.
The score ranges from 0 to 6 – the higher the score, the worse the cognitive impairment.

9. Cognitive and mental health

10. Activities of daily living (ADL) self-performance hierarchy scale

11. Family support

12. Strong relationship with family

13. Family carers status
This measure captures the feelings of distress, anger or depression of the primary family carer. The measure is only applicable to assessments completed in the home and the community only. It is important to know how well the family carers are doing, their well-being have direct impact on the people they are caring for.
From interRAI Home care assessment, 45% of the family carer of people living at home with dementia have reported feelings of distress, anger or depression. This percentage is about a third for Home care client without dementia or cognitive loss.

14. Family carers status – cont.

15. Advance Care Plan (ACP) and Enduring Power of Attorney (EPOA)

16. Like more data?

17. interRAI data visualisation: www.interRAI.co.nz/data