1. NATIONAL CORE INDICATORS FAMILY SURVEY RESULTS FY10-11
Presented to the
Regional Center of Orange County
Board of Directors
October 3, 2013
by LeeAnn Christian

2. The Essence of the Board’s Role
To ensure that RCOC is fulfilling its mission
How do you know?
If RCOC is financially accountable?
If RCOC is in compliance with legal and regulatory requirements?
If RCOC is truly meeting the needs of the people you serve?

3. What is National Core Indicators?
NCI is a voluntary effort by public developmental disabilities agencies to measure and track performance
Collaboration began in 1997
Currently 38 states and Washington, D.C.
Coordinated by HSRI and NASDDDS
Human Services Research Institute
National Association of State Directors of Developmental Disabilities Services

4. What is an “Indicator”?
Indicators are standard measures used across states to assess the outcomes of services provided to individuals and families
Indicators address key areas of concern including employment, rights, service planning, community inclusion, choice, health, wellness and safety

5. Health, Welfare, & Rights
NCI Framework
Individual Outcomes
Employment
Choice & Decision-Making
Relationships
Community Participation
Family Indicators
Information & Planning
Access to Supports
Community Connections
Choice & Control
Health, Welfare, & Rights
Health & Wellness
Safety
Respect & Rights
System Performance
Service Coordination
Incidents & Mortality
Staff Turnover

6. What are the Data Sources?
Family Surveys
Paper/pencil mail-in surveys
Adult children living at home
Adult children living away from home
Minor children living at home
Consumer Survey
Face-to-face interviews
Adults 18+ years

7. Accountability through NCI
Measures strategic goal achievement
Responds in ways that communicate system values
Enhances transparency of the agency’s performance
Involves and gives voice to individuals and families in the conversation about quality and outcomes

8. Family Survey Results Fiscal Year 2011
Adult Family Surveys (AFS) – at home
Statewide – 4014 surveys completed
RCOC – 186 surveys completed
Guardian Family Surveys (GFS) – away from home
Statewide – 4096 surveys completed
RCOC – 256 surveys completed

9. Characteristics of Family Members Adult Family (at home)
Family Guardian
(away from home)
Gender
53% male
62% male
Average Age 32 41
Disability
Autism
22%
21%
Cerebral Palsy
18%
15%
Intellectual Disability
67%
74%
Seizure Disorder
26%
Race/Ethnicity
Asian 6%
Hispanic
29% 4%
White
44%
83%
Primary Language – English
64%
95%

10. Characteristics of Survey Respondents
Adult Family
(at home)
Family Guardian
(away from home)
Age
54 and under
46%
16%
55 and over
54%
84%
Relationship
Parent
90%
85%
Legal Guardian
58%
53%
Visits with Family Member
3 or less times year
n/a
14%
4 to 12 times per year
More than 12 times per year
70%

11. INFORMATION & PLANNING
Families/family members with disabilities have the information and support necessary to plan for their services and supports

14. ACCESS & SUPPORT DELIVERY
Families/family members with disabilities get the services and supports they need

16. COMMUNITY CONNECTIONS
Family members with disabilities use integrated community services and participate in everyday community activities

18. SATISFACTION & OUTCOMES
Families/family members with disabilities receive adequate and satisfactory services and supports
Individual and family supports make a positive difference in the lives of families

21. Summary of RCOC Family Surveys
Generally in-line with CA averages
Areas of Strength
Satisfaction with services/supports received
Service coordinators are knowledgeable and courteous
Services are respectful of family’s culture
Possible Focus Areas
Consumer helping develop IPP
Educating families about complaint and abuse/ neglect reporting processes

22. Moving Forward
Further analyze NCI results and look at other data that may provide additional insight
Present NCI results to various audiences, e.g., RCOC staff, Consumer Advisory Committee, Vendor Advisory Committee, at a Board meeting
Form Ad Hoc Advisory Council to review Family Survey results
Target areas for improvement and suggest strategies to impact change