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Best Practices in Huntington Disease

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Presentation on theme: "Best Practices in Huntington Disease"— Presentation transcript:

1 Best Practices in Huntington Disease

2

3 Introduction to the Team-Based Care Concept and Key Members of the Huntington Disease Care Team

4 Intro to HD

5 Treating HD

6 HDSA Center of Excellence as an Example of Multidisciplinary Care

7 HD Care Outside a Multidisciplinary Clinic

8 Online Resources

9 Long-Term Care Facilities and HD

10 Types of Motor Symptoms and Assessment of Motor Symptoms to Evaluate Disease Progression in Huntington Disease

11 Common Motor Symptoms in HD: Chorea

12 Common Motor Symptoms in HD: Other Than Chorea

13 Rating Motor Symptoms

14 UHDRS: Total Motor Scale

15 UHDRS: Diagnostic Confidence Level

16 UHDRS: Total Functional Capacity

17 Shoulson and Fahn Rating Scale

18 Definitions: At Risk and Premanifest HD

19 Impact of Motor Symptoms of HD

20 Treatment of Motor Symptoms

21 Recognition and Management of Cognitive Deficits in Huntington Disease

22 Cognitive Dysfunction in HD

23 Measuring Cognitive Function in HD

24 Cognitive Deficits in HD

25 Cognitive Changes in HD According to Disease Stage

26 Treatment of Cognitive Dysfunction in HD

27 Behavioral and Psychiatric Manifestations in Huntington Disease

28 Importance of Recognizing Psychiatric Symptoms in HD

29 Importance of Recognizing Psychiatric Symptoms in HD (cont)

30 Common Behavioral and Psychiatric Manifestations in HD

31 Assessment of Behavioral and Psychiatric Symptoms in HD

32 Treatment of Behavioral and Psychiatric Symptoms in HD

33 Exploring the Role of Physical, Occupational, and Speech Therapies in Huntington Disease

34 Importance of Therapists as Members of the HD Team

35 HDSA Centers of Excellence

36 Finding Potential Care Partners Outside a Multidisciplinary Center

37 Need for PT in HD

38 Response to PT in Patients With HD

39 Occupational Therapy

40 Speech-Language Pathologist

41 Dietician

42 Abbreviations


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