1. Outcomes Important to Patients, Public and Practitioners - Key results
Method: Facebook survey
then face to face workshop
18 people participated, 13 people with asthma/carers
69 outcomes described
Important outcomes symptoms, quality of life, flare ups, and adherence (patients prefer ‘control’)
Some overlap with outcomes used in asthma systematic reviews, but also gaps e.g. death
Method: Online survey
235 people participated, 155 health practitioners, 80 people with rhinosinusitis
549 ‘in scope’ outcomes generated
73% of these concerned symptoms (sino-nasal and general), expressed by both patients and professionals.
Correlate with outcomes used in rhinosinusitis systematic reviews
Method: Secondary analysis of Healthtalk breastfeeding data
51 interview transcripts independently assessed by 2 researchers
Generated 15 outcome themes inc; decision making ,role as a mother, mum and baby bonding, routine, and sleep
Outcomes used in SRs (measures of breastfeeding, e.g. duration, objective outcomes for baby e.g. growth, objective outcomes for mum e.g. weight loss)
Some correlation e.g. support for breastfeeding. Unable to ID important outcomes
Asthma - Image is of some of the workshop participants
Mix of people with asthma (x 10 age and types of asthma) parents (2) and HPs (6) (GP, asthma nurses, advice line advisor, respiratory physician)
ENT – image is from the promotional material we used in s and social media
104 out of scope outcomes shared across HPs and Patients - Outcomes as symptoms patients 80% and profs 68%
Breastfeeding - image is of the mind map that the researchers developed from the re analysis of the data
49 women and 2 men
These results will be available in more detail in the summaryreports of each pilot and subsequent papers
I would now like to highlight one key issue from each pilot share out learning and insights