1. Tackling Lung Cancer Policy
Kristy Young, MS, Ches & Lori Earnshaw, MD, FAAHPM

2. How I became involved in ACS CAN
Met James Sharp, ACS-CAN KY Grass Roots manager at the time, in October 2012 when I presented “Treating Pain and Preventing Abuse: The Societal Balancing Act,” at Kentucky Cancer Consortium quarterly meeting.
ACS-CAN national interest in pt QOL and PC
Became ACT Lead
This was how I fell into it…but looking back, I have ideas about how you can be deliberate about getting involved in advocacy…

3. Personal Inventory What do you value? What are you passionate about?
Who are the stakeholders?
Organizations/Associations
Individuals
How do you engage?
How do you focus your efforts?
Patient Quality of Life
Patient Quality of Life Coalition: AAHPM, CAPC, LCA, ACS CAN
Just ASK! Get involved.
Model legislation

4. ACS CAN Model QOL Legislation
“Establish a Palliative Care and Quality of Life Interdisciplinary Action Council to improve the quality and delivery of patient-centered care”
“Establish…the statewide Palliative Care Consumer and Professional Information and Education Program within the cabinet”
Require that “all health facilities shall establish a system for identifying patients or residents who could benefit from palliative care”
Brought to KY, James passed baton to Erica Palmer Smith

5. Engaging Experts & Clinical Champions
Role of Clinical Champion:
Provide content expertise
Interpret evidence
Tell patient stories
Serve as an advisor
Talk about how Erica and I worked together

6. Role of Grassroots Manager
Identify and recruit new volunteers – Are you an ACS CAN member?
Educate and train volunteers on ACS CAN priority legislation
Plan and execute Day at the Capitol
Advocate
Social media
Work closely with Government Relations Director to help move legislation
Kristy take over here—what does the grassroots manager do to gain support for legislation? How does it work?
Rally the troops.

7. Grassroots Movement
Kristy

8. A Day at Kentucky’s Capitol
Kristy
It all culminates here…
All volunteers do the important work of asking their lawmaker

9. Action Items Do your personal inventory Step up as a clinical champion
Become an ACS CAN member
Collect stories
Be prepared
Kristy

10. THANK YOU!