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The Caregiver’s Tip Guide
Brenda Taylor, Founder ESRD Rockstars
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NOT ALL SUPERHERO’S WEAR CAPES
CAREGIVERS FOR KIDNEY PATIENTS SUPERHERO’S
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INFORMAL CAREGIVING
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What Is Informal Caregiving?
Support provided to individuals who are either temporarily or permanently unable to function independently. Informal caregivers often have a long-term commitment to the person(s) they are helping.
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Caregiving Can Involve a Range of Activities Such As:
Assisting with personal hygiene Helping with medication (administering pills, injections, etc.) Assisting with doctor visits Performing wound care Managing finances Acting as a patient advocate Providing emotional support (HUGE!)
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Challenges As a Caregiver:
DON’T BE TOO HARD ON YOURSELF Balancing family dynamics Emotional and physical stress Lack of privacy Financial hardship Sleep deprivation Time management Being afraid to ask for help Depression and Isolation
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Where Do You Begin?
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Remember, When Taking Care of Renal Patients…
Each patient is different. Do what works BEST for YOU!.... KNOW THAT YOU CAN DO THIS!!!
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Things Caregivers Should Know About Dialysis
Modalities-Different ways you can receive dialysis Hemodialysis In-Home Peritoneal dialysis-home dialysis Kidney Transplant
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Patient Compliance-the degree to which a patient correctly follows medical advice. This include treatment and medication compliance. THE 4 IMPORTANT POINTS IN LIVING A LONG HEALTHY LIFE AS A KIDNEY PATIENT: Compliance Treatment Diet Fluid Restriction Medication
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Caregiver Roles Informal Caregiver Sole Role
TIPS FOR BEING THE SOLE INFORMAL CAREGIVER Time management Organize Tasks Delegator-Asking others who are willing to complete various tasks
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Caring for Yourself!!!
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Strategies for Dealing With Caregiver Stress:
Accept help Focus on what you are able to provide Set realistic goals Get connected Join a support group Seek social support Set personal health goals See your doctor
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I Wouldn’t Change My Journey…
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ESRD ROCKSTARS!!!
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Brenda Taylor, Founder http://www. esrdrockstars
Brenda Taylor, Founder
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Please visit our website and leave feedback…we are always looking for ways to improve and better serve you!
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