1. PCORI: Defining a Roadmap for Patient Engagement in Imaging CER PI: Ruth Carlos, MD Org: ECOG-ACRIN
3 Key Barriers to Patient Involvement
Perceived lack of understanding of research methods
Assumption that patient engagement limited to assessing protocol acceptability
Few patients and patient advocates routinely participating in existing ECOG-ACRIN stakeholder activities and limited capacity to expand participation
Objectives
Host a research methods workshop for patients
Develop a patient-informed framework for patient in studies from development to dissemination
Assess feasibility of implementing framework using ongoing 3 research concepts and trials as proof of concept
Increase the number and diversity of patients and patient advocates participating in the development, conduct and dissemination of imaging CER trials.
Concept Development
Implementation
Data Analysis
Dissemination
Life cycle of Comparative Effectiveness Research in Imaging

2. PCORI: Defining a Roadmap for Patient Engagement in Imaging CER PI: Ruth Carlos, MD Org: ECOG-ACRIN
Patient Participation Activities (Choice of activities)
Participate in 1.5 day workshop on patient engagement and imaging CER
Feb 24-25, 2017 in Reston , VA (Final date and location TBA)
Attend a ½ day workshop on research methods with clinician-scientists and statisticians
Participate in breakout sessions on how to engage patients during the different phases of a research study
Brainstorm about increasing numbers in patient advocates in ECOG-ACRIN
Participate in creation and drafting of best practices in patient engagement in imaging CER white paper
Twice a month conference calls
Participate in (drafting and) reviewing best practices for patient engagement in one of these areas of research: design/development, implementation, data analysis and dissemination
Must have attended workshop
Participate in panel on PCORI grant patient engagement activities update
Spring 2017, May 4-6 Washington, DC; Fall 2017, October 26-28, Orlando, FL
Serve as speaker or panel discussant
Must be participating in best practices write-up
ECOG-ACRIN will reimburse for time spent working on project and for any travel costs.