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Sources of Vital statistics Data
Data analysis and Report writing workshop
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What are vital statistics?
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Population and institution based sources
Population-based data sources are those that are representative of the whole population. population surveys, censuses civil registration. Institution-based data sources are those collected routinely from administrative and operational activities, Health Information Systems (HIS) hospital discharge data, police records for attended deaths, social security records. health facility surveys, where data are collected in an institution.
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Routine vs period collections
Routinely collected administrative data CRVS HIS/ Hospital information Health facility data Periodic collection Censuses Surveys
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Census collections Primary source of mortality data in PICTs
A population census is a compulsory, universal and simultaneous enumeration of the national population, conducted on a periodic basis. Provide population denominator data AND mortality data Information on births and deaths may be derived directly indirectly from changes in population (by age and sex) based on survival and migration reliant on accurate migration data
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Census ...a compulsory, universal and simultaneous enumeration of the national population, conducted on a periodic basis Censuses provide denominators (population) for computing fertility and mortality indicators Can also provide numerators (births and deaths), and data for indirect estimation of mortality through a question on retrospective events
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Calculating mortality from a census
Direct measures ask about births and deaths in the household over a nominated reference period – usually within the last 12 months. Take a complete birth history (not usually used in the census) Indirect measures collect some information on births and deaths then approximate when these events would have occurred. Children ever born –children surviving Orphanhood Widowhood These measures can then be used as inputs for model life tables that generate estimates of age-specific measures of mortality and LE. Models that use a single input parameter based on childhood mortality have been shown to have a tendency to under-estimate mortality in PICTs
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Periodic Surveys i.e. Demographic and Health Surveys (DHS) and the UNICEF Multi- Indicator Cluster surveys (MICS). not ongoing data collections, but are collected in a specific period of time. collect data for a proportion of the population considered to be representative of the broader population of interest. may collect data to undertake direct estimation of mortality from reported deaths, or indirect estimation based on the age distribution methods described previously. The reliability of estimates from survey data is driven by how well the sample selection reflects the broader population of interest Surveys are also subject to recall bias, and response bias Repeated household surveys may also be used to estimate mortality based on survival and migration
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Birth history questionnaire
Typical birth history, from the Demographic and Health Survey conducted in 1999 in zimbabwe. Most major survey initiatives will collect a complete birth history; the DHS in particular is a major source for direct estimations from birth histories. Usually will allow up to 20 entries, depending on the country context. Using this data, you can calculate the risk of dying before age 1 or age 5 (IMR or child mortality). Data crunching part can be tricky, but the concept is remarkably straightforward: Count the number of children that died before age 1 or age 5. Count the total number of children that were born. Divide, and presto: IMR or CMR.
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Problems with using birth histories
Recall Reference period Inaccurate reporting from respondents Sample size in low mortality countries Cultural appropriateness Length of the questionnaire Recall: Mothers may not recall every birth correctly; birth histories seem to improve recall, but there may still be problems with women, for example, reporting a stillbirth as a death (which they should not) or not reporting a child who died very shortly after being born. Some of these concerns are problems in all sources of data (i.e. stillbirth vs. birth followed quickly by death) Reference period: because birth histories are for the entire reproductive span of the woman being asked, the mortality rates gleaned from the analysis are, in fact, average rates over a particular period. Censoring. Calculating under 1, or under 5 deaths requires you to “censor” your data: for example, if you are examining under-5 mortality, you can’t include any children in your analysis who were born less than 5 years ago, as you don’t know yet if they will have made it to their 5th birthday. This means that your estimate is older than you might like. For this reason, analysts will sometimes calculate under-2 and under-3 mortality instead of under-5, as it yields more recent results but is still a close approximation of under-5 as most childhood deaths appear to occur in the first 3 years of life. Sample size, in low mortality countries, can mean that you don’t have enough children dying to make an accurate estimate. Cultural appropriateness: both in terms of asking unwed women about their reproductive history (samples often need to be limited to married women of reproductive age, thus not truly representative), and asking about dead children (i.e. hill tribes in thailand will not speak of deaths). The major reason that birth histories are not included into a survey or census instrument is simply that there are too many questions and it will take too long to ask women about all of their births and related details. In such a situation, it is still possible to estimate child mortality, it just requires n
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Routine vital registration collections
Civil registration provides a legal basis for the recording of vital events such as live births & deaths In most developed countries, it is a legal requirement that: a medical practitioner completes a death certificate whenever anybody dies vital events, such as births and deaths, are registered An efficient routine CRVS system, with medical certification of CoD, provides ongoing and relatively low cost data collection and therefore timely mortality data for decision making upheld as the “gold standard” for birth and death data
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medical certificate considered the reference standard for CoD information, in the absence of an autopsy, as a qualified practitioner is required to assess the case and make an informed decision concerning the sequence of events that led to the death
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Civil Registration Dual function – establish civil status, collect data for planning Citizen’s / government responsibility Passive system, as opposed to special registration activities Multiple government agencies responsible Data transmission losses, need for inter-sectoral collaboration Difficulties in cause attribution in some situations Data may not be timely without strong incentives to report As the legal record, civil registration of vital events is frequently legislated as the official source for mortality data despite not always being the most reliable data source in country. Discuss incentives
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Core functional areas for CRVS and underlying support needs
For good evidence for policy and planning – all of the components must be functioning well Strong CRVS systems are multi-sectoral
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Figure 5.1: Diagram of the reporting and registration processes for deaths
Local Government Office (Island Council etc) Civil Registrars Office (Ministry of Justice) National Statistics Office Ministry of Health Family National Planning Office / Process
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Example Routine Death Reporting System
Town Officer Civil Registrars Office (Ministry of Justice) Death Certificate National Statistics Office Family National Planning Office / Process Health System Doctor* Nurse# Health Public Information Health System Nursing Medical Certificate of Death Monthly report Notice of Death District Officer Prime Ministers’ Office Quarterly report
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Health registration of vital events
Vital events such as births and deaths are also often recorded through routine data collections within the health system. health data collections are primarily to inform operational decisions, and CoD is central to this purpose. may include medical certificates community nursing reports, facility based data Must consider if this is population based data or facility based data
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Proportion of estimated deaths reported by Island group Tonga : Reconciled data – unadjusted
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Proportion of estimated deaths reported by gender, source and period, Tonga : Two-source analysis
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Demographic surveillance sites
A demographic surveillance system captures all vital events in a specified area. Often combined with disease detection (sentinel surveillance) used in PNG unlikely to be a suitable solution in other PICTs with small populations
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Data collection (mortality level data)
Summary of Population based Data Collection Approaches for Mortality Data Data Source Periodicity Sample frame Period of interest Data collection (mortality level data) CoD Data Collected? Census Periodic – 5-10 years Whole Population Retrospective Direct - (deaths in the household) Indirect – partial birth history (CEB/CS) & orphanhood data No Survey DHS ~ 5 years Selected sample – representative of whole population Direct – complete birth history MICS ~ 5-10 years 2 stage clustered sample – representative of whole population Indirect - partial birth history (CEB/CS) Other household based surveys Usually once-off Varies Possible - using verbal autopsy Routine vital registration Civil Registration Continuous Whole population (depending on coverage) Current Direct reporting of event Yes Health vital registration Hospital discharge records Hospital cases only Other routine databases Various Varies – usually targets sub-population of specific interest. Usually limited Demographic surveillance Sites Selected areas – usually not representative of whole population over time. (source: Carter, 2013)
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Institution-based data sources
Institution-based data sources in the health sector primarily include those based at hospitals and health centres In the hospital setting, unit record data on deaths and CoD may be collected through hospital separation data (hospital records that indicate whether the patient was discharged home from hospital, transferred to another facility or died). CoD is based on the principal diagnosis at the time of death Countries may also collect data on deaths through primary or community health care nursing programs, deaths recorded on a separate form to be sent to the local area nursing manager and/or recorded on monthly reports.
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Registries source of outcome data
i.e. – cancer registries, pregnancy registers May be population or institution based Population registries much more common where there is national testing facilities tend to be more useful for measures of morbidity rather than mortality (as they are generally a secondary data source in this case). For deaths: registries record anyone who dies WITH the disease rather than FROM the disease (as the designated underlying cause) therefore the data is not directly comparable to that obtained from vital registration. Pregnancy registers often maintained at health facility level, but rarely electronic and generally not centrally collated.
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Data sources to ascertain causes of death
pathological autopsy report (gold standard) physician certification at time of death physician certification in absentia, using medical records lay assignment of cause verbal autopsy – interview with relatives of deceased to identify symptoms leading to death
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Where does your data come from?
Think about the data you brought to the course and where it comes from… Why was it collected? How was it collected and by whom? What are the strengths and weaknesses of that data collection? What impact is that likely to have on your data?
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