1. The Status of Part C Data Systems - 2013
Lisa Balivet, ITCA Data Committee Co-Chair
Alaska Acting Part C Coordinator & Data Manager
Pam Roush, ITCA President
West Virginia Part C Coordinator
DaSy Conference, September 15-17, 2013

2. IDEA Infant and Toddler Coordinators Association (ITCA)
Not-for-profit corporation promotes mutual assistance, cooperation, exchange of information and ideas in administration of Part C and provides support to state and territory Part C coordinators

3. Purpose of the Survey Need for knowledge of state data systems due to:
Lack of national data regarding state data systems
States’ use of ARRA funding to:
Expand existing data systems; and
Develop new systems

4. Survey Construct The Survey Questions were developed to
address the following components:
Data Infrastructure
Data Collection
Data Security
Data Validation
Data Analyses
Staffing

5. Data Infrastructure
All components that relate to the design, hardware and/or software, costs and development of data system, data management responsibilities.

6. Infrastructure Systems
47 of 49 respondents
43 using a state-level centralized data system
34 use a web-based data system

7. Reporting Capacity

8. Budget 35 of 46 respondents budget for data system maintenance
21 of 45 respondents have line item for data system enhancements
14 of 19 health , 7 of 12 education , 14 of 18 other

9. Identifiers

10. Data Collection
What data is collected as opposed to how it is collected

11. Workforce Data

12. Child Data

13. Focus on how data is protected and shared
Data Security
Focus on how data is protected and shared

14. Data Sharing Methodology

15. Data Linkage Across EC Programs
4 states reported they could ‘share’ data, one state could ‘link’

16. Transfer of Child Identifier
10 transfer, 6 new ID w/ tracking, 21 new ID w/o tracking – maybe substitute this page with the child identifier by LA from p.47

17. The methodology used to ensure valid and reliable data
Data Validation
The methodology used to ensure valid and reliable data

18. Data Validation Tools

19. Ways that states are using the data that is collected.
Data Analyses
Ways that states are using the data that is collected.

20. State Usage of Child Data

21. How states are staffing the various functions of their data system

22. Data System Staffing

23. For More Information Pam Roush, ITCA President Pam.S.Roush@wv.gov
Lisa Balivet, Data Committee Co-chair