1. EULAR Study Group for Collaborative Research
Who we are
A platform for researchers and Patient Research Partners (PRPs) to exchange knowledge regarding patient participation in rheumatology research
Activities & events
EULAR Brussels Conference (Oct 2017)
Evaluation and training meeting PRP network (Oct 2017)
Meeting with American and Canadian PRP network organisations (Feb 2018)
Poster at the PARE congress (Feb 2018)
Approval new PRP project proposal (March 2018)
Webinar Patient Involvement in HTA research for the EULAR course on Health Economics in Rheumatology (April 2018)
Achievements
59 trained PRPs
Almost 100 EULAR projects with PRP involvement since 2008
More than 110 ARD + 18 EULAR recommendations lay summaries reviewed by PRPs
7 PRPs are certified EUPATI fellows
3 PRP’s in EMA advisory committees
7EU funded projects with active EULAR PRP involvement
Aims
To establish a community of practice comprising researchers and PRPs with an interest in developing new and innovative methods to make the voice of patients heard in rheumatology research.
PRP training meeting, Amsterdam (Oct 2017)