1. Health care quality from the persons with dementia’s perspective: Development and testing of a questionnaire
Ann Karin Helgesen and Vigdis Abrahamsen Grøndahl RNT, MSc, PhD Associate Professors in Nursing Science Østfold University College Norway 1

2. Statement of the problem
47.5 million people have dementia worldwide
7.7 million new cases every year
A growing patient group’s opportunity to express their views on the care they receive is limited

3. Statement of the problem
Persons with dementia can provide meaningful answers
The Quality from the Patient’s Perspective (QPP) questionnaire

4. The purpose
To adapt the Quality from the Patient’s Perspective Questionnaire (QPP) for use by persons with dementia
To describe perceptions of care quality among persons with dementia in special care units in nursing homes

5. Ethical considerations
Norwegian Social Science Data Services

6. Methodology & Theoretical orientation
A cross-sectional design
Special care units (SCU) in three nursing homes
61 persons with dementia (54.5%)
Response rate of 96.8%
Interviews using an adapted version of QPP labeled Quality from the Patient’s Perspective (QPP-DC)

7. Exploratory factor analysis Cronbach’s alpha

8. Ages ranged from 60 to 100 years (mean age 85.3 years)
Results
Ages ranged from 60 to 100 years (mean age 85.3 years)
Two-thirds were women
54% had upper secondary school or higher education
34% of the respondents were assessed using the CDR
The score of the MMSE ranged from 1 to 26 (mean value 12.98)

9. Results
The QPP questionnaire specifically for dementia care (QPP-DC) consists of 23 items representing seven factors with an eigenvalue ≥ 1.0
The reliability coefficients were acceptable for most factors

10. Conclusions & Significance
QPP-DC provides a meaningful tool for care quality improvements in SCUs by detecting areas of importance concerning healthcare for persons with dementia.
Efforts must be made to provide a more person-centered approach in order to help and support the persons with dementia when feeling uneasy and lonely.

11. Thank You for Your attention
Phone: / Phone: / Østfold University College Faculty of Health- and Social studies N-1757 Halden Norway