1. Datamanagement November 7th, 2017 - Brussels
11/28/2018
Introduction of Next-Generation-Sequencing technology in (hemato-) oncology in the Belgian healthcare system
Datamanagement
November 7th, Brussels

2. From data input … Oncological care programs Pathological
REGISTRATION
Oncological care programs
Pathological
anatomy
Health insurance
companies
Belgian Cancer Registry population based
Project-specific
NSSN
ADDITIONAL
KSZ/BCSS
vital status
IMA-AIM
claims data on medical
acts & medications
Regions
Death certificates

3. Datasources 104 Hospitals
100,000 records/year
Registration form
84 Laboratories for pathological anatomy 650,000 records/year
DATA TRANSFER
750,000 records/year
MOC-COM form
Health Insurance Companies
Historical database
1,500,000 (pre) invasive tumours

4. Laboratories for pathological anatomy
Good collaboration with pathologists
Structured dataset in accordance to international guidelines and protocols
Datacollection in batch through extracts
As from 1/1/2018 through Healthdata.be platform
Double delivery through batch remains compulsory until exhaustivity and quality of data can be guaranteed
Business logic at the BCR

5. Datamanagement NGS and molecular tests
BCR essential partner in the introduction of NGS technology in (hemato-) oncology in the Belgian healthcare system

6. … To data output Research by BCR itself
Cancer Burden - Epidemiology
Methodology
Quality of Care, volume-outcome
Capture molecular data …
Research by
BCR itself
Transfer of data to external researcher
Cooperation with external partners
WIV CaCe: Re-integration after cancer
WIV: Nucabel 1, Nucabel 2
IMA …
KCE: GCP, HTA
Evaluation screening programmes
RIZIV
RIZIV/CaCe: NGS
IMA
WIV-CaCe …  6