1. Director, Advocacy & Public Policy Epilepsy Foundation New England
Women In Government State Policy Roundtable on Medical Continuity of Care and Pharmacological Innovation May
Bill Murphy
Director, Advocacy & Public Policy Epilepsy Foundation New England

2. Women In Government State Policy Roundtable on Medical Continuity of Care and Pharmacological Innovation May

3. Close to 3 million Americans currently live with epilepsy.
Women In Government State Policy Roundtable on Medical Continuity of Care and Pharmacological Innovation May
Close to 3 million Americans currently live with epilepsy.
1 in 26 Americans will develop epilepsy at some point in their lifetime.
More than 67,000 people in Massachusetts have epilepsy (seizure disorders).

4. Women In Government State Policy Roundtable on Medical Continuity of Care and Pharmacological Innovation May
40 Senators More than 1,600 people living with epilepsy in your district. 160 House Members More than 400 people living with epilepsy in your district.

5. Vagus Nerve Stimulation (VNS) Responsive Neurostimulation (RNS)
Women In Government State Policy Roundtable on Medical Continuity of Care and Pharmacological Innovation May
Medication
Cannabis (CBD oil)
Surgery
Vagus Nerve Stimulation (VNS)
Responsive Neurostimulation (RNS)
Dietary Therapies

6. Women In Government State Policy Roundtable on Medical Continuity of Care and Pharmacological Innovation May
Approximately 25 to 30 percent of the epilepsy population lives with seizures that cannot be controlled by existing drugs or surgery

7. Women In Government State Policy Roundtable on Medical Continuity of Care and Pharmacological Innovation May
Timely access to appropriate care and effective coverage for epilepsy medications is a critical concern for people living with epilepsy.

8. Removing barriers Access to specialists
Women In Government State Policy Roundtable on Medical Continuity of Care and Pharmacological Innovation May
Removing barriers
Access to specialists
Prior Authorization Step Therapy Medication substitutions Formulary changes (affordability, high cost sharing, tiering) Onerous drug monitoring requirements Access to emergency medications

9. Women In Government State Policy Roundtable on Medical Continuity of Care and Pharmacological Innovation May
Amendment #13 to H.4200 Massachusetts Patient Access and Safety Commission

10. SUPPORT OF HB 791 Representative Jennifer E. Benson
Women In Government State Policy Roundtable on Medical Continuity of Care and Pharmacological Innovation May
SUPPORT OF HB 791
 Representative Jennifer E. Benson
An Act relative to patient medication adherence
Exemption process for step therapy !!
Joint Committee on Health Care Financing

11. Women In Government State Policy Roundtable on Medical Continuity of Care and Pharmacological Innovation May
THANK YOU !