1. Annual Fall Meeting November 13, 2016
6:30pm
Welcome
J. Kirklin/M. Everitt
6:40pm
Steering Committee Report
M. Everitt
6:50pm
DCC Update
J. Kirklin
7:05pm
Web Based Data Entry
D. Naftel
7:20pm
Database Committee Report
M. Richmond
7:35pm
Foundation Update
C. Collum/B. Wilk/R. Gajarski
7:50pm
Risk Factor Model
K. Schumacher
8:05pm
Heart Failure Simulation
B. Feingold
8:10pm
iPHFR
R. Gajarski
8:15pm
Break
8:30pm
Pedimacs Report
B. Blume
8:40pm
Scientific Committee Report
D. Hsu
8:50pm
Scientific Committee Sponsored Workshops
9:35pm
New Business
9:45pm
Adjourn

2. Committee Members 2016-2017 Database Committee
Marc Richmond, MD Chair Nancy McDonald, NP Non Physician Rep. James Kirklin, MD UAB Representative Jacqueline Lamour, MD Member at Large Joshua Sparks, MD Member at Large Philip Thrush, MD Member at Large Katie Simpson, MD Member at Large

3. WBDE Version 1.1.0 went live in August Save for later button moved
Dashboard defaults to “active” patients
Automatic generation of forms
Demographics
Annual follow-up (forms 8 and 12)
Clarification on justification for listing/MCS

4. Data Mapping
Infection Organisms

5. Data Mapping Infection Organisms Current: Free Text Box
Coming Soon: Check all that apply
Mapping of over 450 organisms entered 1993-present

6. Medications at Annual Follow Up
Data Mapping
Medications at Annual Follow Up
2010 Data Collection Form
2015 Data Collection Form

7. Medications at Annual Follow Up
Data Mapping
Medications at Annual Follow Up
Current: Free Text Box
Coming Soon: Check all that apply
Mapping of over 2,500 medications entered 1993-present

8. Other, specify
There are several dozen places in the database where “other, specify” is an available option.
The Database Committee is beginning to review what has been entered for these “specify” fields for data cleaning.
Once all fields have been reviewed, the Committee will have a quarterly review of all data entered for data cleaning and to determine if additional answer choices need to be added to questions.

9. Ongoing Adjustments as issues arise Recurrent questions
Standard units of measurement
Recurrent questions
Many questions arise because various centers report results in different ways
ABO titers
HLA/DSA
Catalogue questions as a resource

10. Upcoming
Coordinators meeting
Q&A session
ISHLT April 2017