1. ALZHEIMER’S AUSTRALIA AND RESEARCH
GLENN REES, CEO ALZHEIMER’S AUSTRALIA

2. By 2050 there will be nearly 1 million people with dementia in Australia

3. By 2050 there will be nearly 1 million people with dementia in Australia
AND THERE IS NO CURE

4. Alzheimer’s Australia’s approach to dementia research
Research is given equal priority with services and support in our advocacy
Focus on capacity-building in research
Consumer involvement is vital
Translating dementia research into practice

5. 1. RESEARCH IS AS IMPORTANT AS SERVICES AND SUPPORT IN ADVOCACY
LESS THAN 0.5% OF THE COST OF DEMENTIA CARE IS SPENT ON DEMENTIA RESEARCH

6. Dementia is the Third leading cause of death in Australia
Behind heart disease and stroke
BUT GOVERNMENT FUNDING FOR DEMENTIA RESEARCH FALLS BEHIND FAR BEHIND THE OTHER MAJOR DISEASES
National Health and Medical Research Council funding for research on main chronic disease’s ( ).

7. Alzheimer’s australia is advocating for the government to commit $500 million to address dementia $200 million of this is for research

8. 2. FOCUS ON CAPACITY-BUILDING
Alzheimer’s Australia Dementia Research foundation supports the brightest emerging researchers to build their careers in dementia research

9. 3. CONSUMER INVOLVEMENT IN RESEARCH
Consumer involvement is not interviewing participants
Consumer involvement is not asking consumers to recruit for you
Consumer involvement is listening to consumers
THERE ARE LOTS OF DIFFERENT WAYS TO INVOLVE CONSUMERS
None
Receives information
Are consulted
Plan jointly
Initiates the research

10. THE CONSUMER DEMENTIA RESEARCH NETWORK
ROLE:
To provide a consumer perspective.
To be a resource
To remove barriers
Active role in all stages of research projects (not just as research participants)
Involvement when consumer input adds value but not as a token

11. 4. KNOWLEDGE TRANSLATION
15.6 years on average for landmark research to achieve 50% uptake in healthcare practice1
86% of health and medical research never reaches practice at all1
30-40% of healthcare is inconsistent with best-practice scientific evidence2
20-25% of healthcare received by patients is either unnecessary or harmful2
1 Balas, E. A., & Boren, S. A. (2000). Managing clinical knowledge for health care improvement. Yearbook of Medical Informatics, Schlattauer: 65-70
2Grol, R. (2001). Successes and failures in the implementation of evidence-based guidelines for clinical practice. Medical Care, 39(Supp 2),

12. CARERS & PRACTITIONERS
KNOWLEDGE TRANSLATION CYCLE
Knowledge Producers
RESEARCHERS
Knowledge Users
CARERS & PRACTITIONERS

13. PROGRAM STRUCTURE National Quality Dementia Care Initiative
Active Consumer Network
Suite of Funded Projects
Service Provider Advisory Network
Independent Program Evaluation