2. 4
Years of
Cultivating Hope
2oo8-2o12

3. Bismillah
CULTIVATING HOPE
Masnoon dua

4. INCIDENCE OF PARKINSON’S DISEASE
Parkinson’s disease affects about
1 of 250 people older than 40
1 out 100 people older than 65
1 of 10 older than 80.
It commonly begins between ages of 50 and 79.
Rarely occurs in children or adolescents
CULTIVATING HOPE
Source:

5. Parkinson’s cases expected to double worldwide by 2030
The bulk of this growth in the next 15 years will not be in the US and Europe but in other places namely China and the subcontinent
The challenge is …..
This growth will occur in societies where there is limited infrastructure in place to diagnose individuals, much less address their medical needs or the societal impact
CULTIVATING HOPE

6. Parkinson’s in Pakistan
\\\
In a study conducted covering most populous countries of the world, estimated PD cases in Pakistan are around 450,000* and there are possibly another 500,000 who have never consulted a doctor
No research available on incidence of disease in Pakistan
CULTIVATING HOPE
*Figures estimated based on incidence in India

7. 4
Years of
Cultivating Hope
2oo8-2o12

9. PPS Board [ for details see the web site ]
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10. Society’s Progress
Web site – to provide a forum for learning and dialogue and sharing of best practices
Close cooperation with European Parkinson’s Disease Association (EPDA) Parkinson's Disease Society UK and Parkinson's Disease Foundation US
functional
Developed a Multilingual Brochure titled ‘Cultivating Hope’
aimed at creating increased awareness
Brochure on “Exercises for PD patients” developed and distributed free amongst patients and GP clinics.
Registered under societies act
Auditor appointed
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11. Creating awareness
On World Parkinsons Day ,
PPS Directors participated in a special program on Parkinson’s developed and aired by channal’ TV one”
Widespread press coverage
Speaking at public forums
Sponsored six talk shows on Heath TV with specially developed program ‘a day in a life’
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12. Our Progress Coping Strategies
Support Groups sessions held at AKUH <Jinnah and South City Hospitals covering coping strategies and share each others experience on tips and tricks.
Seminars held over //
‘Keep Moving’ - Aga Khan University Hospital
‘Speaking Effectively’ - Aga Khan University Hospital
‘Mood Management' South City Hospital
Seminar on Deep Brain Simulation - AKUH
Parkinson’s Management Clinic - Aga Khan University
Well…ness Seminar 1 at JPMC
Well…ness Seminars 2 at South City Hospital
Wellness seminar 4 on music therapy Nov 09 at Jinnah hospital auditorium
Addressed Rotary Metropolitan club on what is Parkinson's
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13. Seminars held ; ]up north]
Lahore TIPS AND TRICKSof managing Pd on World Parkinsons Day April
These seminars were largely attended by PD patients and addressed by eminent neurologists.
Seminar held in collaboration with Shifa International Hospital Islamabad in December 2011
Held PD Unity walk to create awareness, and promote healthy life style
At AKUH (ongoing)
CULTIVATING HOPE

14. Activities on camera

16. Parkinson’s Unity Walk

19. World Parkinsons Day seminar - April 2008
CULTIVATING HOPE

21. Seminar on Effective Speaking Techniques -
CULTIVATING HOPE

22. Issues in Pakistan Limited number of neurologists
GP as first point of contact have little knowledge of disease
Movement disorder clinics missing
Doctors have limited info / time
Patient not fully briefed on importance of self management
Awareness limited - no research on incidence, estimated 4,50,000 afflicted
Nursing specialists ?
Lack of support groups
Career dilema/ support system
Deep brain stimulation ? - Cost US$40k / India US$10k
CULTIVATING HOPE

23. Road Map -
Work with leading hospitals to develop specialized Parkinson’s/movement disorder centers in order to help give PwP a multidisciplinary PD management facility
Work with teaching hospitals to develop short one day courses for GP’s who for a developing country with limited Neurologist resources are first line of diagnosis and treatment
Seek support of media and Pharma / philanthropic individuals to support projects/initiatives.
Reach out to Pak doctors abroad for their help and assistance.
Increase awareness of the disease in Pakistan and help PwP and caregivers better manage the condition going forward.
Produce PD disease management info booklets in Urdu under Take charge theme”
Continue support group activity
Develop physical therapy awareness and facilities
Partner with leading hospitals in creating centres of exce
CULTIVATING HOPE

24. PD patient climbing steps is like climbing the Mount Everest
For a
PD patient climbing steps is
like
climbing the
Mount Everest
CULTIVATING HOPE

25. You are not alone