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Lysosomal Storage Disorders: Optimizing the Transition From Child to Adult Care.

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Presentation on theme: "Lysosomal Storage Disorders: Optimizing the Transition From Child to Adult Care."— Presentation transcript:

1 Lysosomal Storage Disorders: Optimizing the Transition From Child to Adult Care

2

3 Educational Objectives

4 What Is Nephropathic Cystinosis?

5 Clinical Manifestations of Nephropathic Cystinosis

6 Transition vs Transfer

7 Critical Components of the Transition Process

8 Critical Components of the Transition Process (cont)

9 Critical Components of the Transition Process (cont)

10 Few Clinicians Are Trained to Care for Children and Adults With Cystinosis

11 Cysteamine Therapy

12 Cysteamine Therapy (cont)

13 Patterns of Posttransplant Adherence

14 Risk Factors for Posttransplant Nonadherence

15 Strategies for Dealing with Nonadherence

16 Conclusions

17 References

18 References (cont)

19 References (cont)


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