1. The business side of things
Yorkshire and Humber Congenital Heart Disease Network
The business side of things
Dr Elspeth Brown
Network Lead Clinician

2. CHD Standards - 2017 Self Assessment Exercise
Excel spreadsheet sent to all Level 3 Centres
16 Children’s Centres
2 ACHD Centres
240 standards
Local/Network/Both
RAG rate
Thank Yousef for developing spreadsheet

3. LOTS OF GREEN

4. LOTS OF AMBER

5. MUCH LESS RED

6. P IT Telemedicine Nursing PECs Echocardiography Education Audit
Clinical Governance
Transition
Any more ??
Neither Debra, myself or Jo IT experts. Struggling to find good IT support
Telemedecine has been a saga in itself
PECS – Lucky we have PECS in most places and are training PECS
Some work to check on CPD
Echo – a big project. Starting with guidelines who needs echos
Then CPD for echocardiographers

7. IT A6 ( L3) National health records summary
A13( L3) Access to IT system in outreach clinics
B6 (L3) Local staff member to input into Network database
F4(L3) Local internal database linked to Surgical Centre
F8(L3) Each Local Cardiology Centre to provide diagnosis information for Network database

8. Engagement - professionals

9. Patient and family support
Facebook – Leedscongenitalheartunit
CHSF
National charities

10. Telemedicine A12 (L3) Links to the surgical centre for Echo assessment
Participation in MDT meetings
Emergency referrals
Image transfer (echo,CT,MRI)

11. Nursing
A17(L3) B2(L3) Designated nurses with training in paediatric cardiology/ACHD
B4(L3) B3( L3)Designated 0.25wte nurse with a specialist interest to participate in clinics and support inpatients
E6(L3) Rotations for local nurses

12. PECs/ACHD Doctors
B1 (L3) At least one PEC or Consultant Cardiologist with an interest in ACHD
PECs
20% of job plan in paediatric cardiology
Be part of a CHD Network
Linked to a consultant paediatric cardiologist
Take responsibility for the running of a joint clinic
Hold an Honorary Contract with the Surgical Centre
A15(L3)To attend MDT 6 times per year

13. Cardiac Physiology
B8(L3) Each Local Cardiology Centre must have a cardiac physiologist with training in congenital echocardiography
D5(L3) Range of equipment and investigations to be agreed with Network
-Access to range of cardiac physiological investigations
-24/7 access to modern echo equipment
-Facility to store and transfer echo images

14. Education and Research
E4(L3) Formal annual training plan for all healthcare professionals involved in CHD
E5(L3) Sufficient nurse educators to provide standardised training and competency based programmes
G1(L3) Each Level 3 Centre should participate in research

15. Clinical Governance
F2(L3) All clinical teams to operate within a robust clinical governance framework
- network audit and quality improvement
- network meetings
- guidelines and protocols
- review of mortality, morbidity and adverse incidents
F3 (L3) Local Centres must report on adverse incidents and the learning must be shared locally and nationally

16. Clinical Audit
F1(L3) Collaboration on inter-unit peer review every 5 years
F5(L3)Participate in audit with at least 1 audit of clinical significance every year
F6(L3) Audits must link with similar audits across the Network

17. Transition
I1 ( L3) Networks to minimise loss of patients to follow up during transition and transfer
Loss to follow up rates must be discussed at Network meetings
Transition must be tailored to individual circumstances

18. Feedback Feedback to all the Level 3 Centres Agree action plans
Quality Dashboard
ASK US TO DO THINGS !!

19. The Next 6 months Establish the Network Board
Describe the Network’s clinical governance framework
Ensure consistency around tariffs
Agree a work programme for the next 2 years based around the standards
Keep planning to be the best
NHS England have agreed some funding and will soon release guidance on network board consistency, structure and accountability