1. Transforming Care Partnership Listening to the views of People First – Croydon
Wednesday 1st July
12:00 – 12.30

2. Who are we?
We’re from the Transforming Care Partnership in south west London
Jill Mulelly – patient and public engagement
Clare Thomas – patient and public engagement

3. Why are we here?
We want:
To talk to you about what is happening with the Transforming Care Partnership in your local community
Get your advice on how to speak to people with learning disabilities about this work

4. What is a Transforming Care Partnership?
The Transforming Care Partnership is a group of professionals that has been set up in each area of London. We have been asked to help take forward a new plan called ‘Building the right support’. The plan explains how we can improve services for people with learning disabilities and or autism.

5. Why do we need to change things?
Some people with learning disabilities still live in places called assessment and treatment units – these are like special hospitals
People sometimes stay in these special hospitals when their behaviour is difficult for others to manage.

6. What are the problems?
Lots of people in special hospitals are far away from their friends and family
And sometimes people stay longer in these special hospitals than they should do

7. James’ Story… James is now 38 years old.
He has a learning disability and behaviour that challenges.
Behaviour that challenges means that sometimes James can break things or hurt himself if he is confused or upset.
With the right support James does not feel confused or upset very often.
But James has not had the right support, so his behaviour has got worse over the years.

8. James has lived in lots of different places.
All of them were far away from his home and family
James kept moving from home to home because he was not getting the right support.
There were lots of problems like
staff not knowing how to support him
staff not taking him to the doctors when he was ill
bullying

9. James also stayed in 2 hospitals.
He did not always get the right support in the hospitals
In one of the hospitals he was hurt by other people who lived there

10. James’ family were very upset.
They wanted him to move closer to home but there were problems with the money for James’s care.

11. James has been in the hospital for 5 years.
The money has finally been sorted out and James can move to his own house with the right support.
He will be close to his family again.
But this does not make up for all the bad things that have happened.
We need to make sure that this does not happen again.

12. What we want to do
We want to support people in their homes and reduce the number of special hospitals
We want people to get support in the community, helping families to stay together in the areas they know
We want people to get the right treatment closer to where they live

13. We know…
51 people from south west London are in special hospitals. These hospitals are not in south west London
6 of these people are under the age of 18

14. People must be at the centre of our plans
We need to work together with people who have learning disabilities and/or autism so that services are better in the future

15. How we are working together
Wider reference group – we have formed a group of local organisations and carers to tell us their experiences
We would also like to talk to people who use services – and we need your help.

16. What we need your help with…
1. Who to speak to?
People in special hospitals
People who use community services
Carers
Advocates
2. Where should we go?
Day centres
Drop ins
Supported living
3. How?
On the phone
In person
Working with peer advocates

17. Thank you for your time and ideas