1. DRILL’s First Round
05/12/2018

2. Disabled people creating knowledge
Challenging what is considered ‘natural’
‘It is not individual limitations, of whatever kind, which are the cause of the problem but society's failure to provide appropriate services and adequately ensure the needs of disabled people are fully taken into account in its social organisation.’-Mike Oliver, 1990
MIKE OLIVER BA PhD
READER IN DISABILITY STUDIES
THAMES POLYTECHNIC
Paper presented at Joint Workshop of the Living Options Group and the Research Unit of the Royal College of Physicians on
PEOPLE WITH ESTABLISHED LOCOMOTOR DISABILITIES INHOSPITALS
Monday 23 July 1990
05/12/2018

3. Disabled people creating knowledge
Disability-led research led to:
The 1995 Disability Discrimination Act
The Community Care (Direct Payments) Act 1996
Disability Research into Independent Living and Learning
Disability-led research for the 21st century
5 year, £5 million research programme funded by The Big Lottery
Finding evidence, generating solutions
Tom Shakespeare noted that research led by disabled people provided the evidence of discrimination, which persuaded UK government to introduce 1995 disability discrimination law
05/12/2018

4. Co-produced research Sharing knowledge and skills
Disabled people as researchers, not research subjects
Collaboration, not consultation
Focus on solutions
What is co-production and disability led?
Led by disabled people and their priorities, usually in partnership with researchers (disabled and/ or non-disabled) and others.
DRILL projects are not undertaken ‘on’ or ‘for’ disabled people; they are undertaken ‘with’ and ‘by’ disabled people.
05/12/2018

5. The DRILL programme Led by 4 organisations Disability Rights UK
Inclusion Scotland
Disability Wales
Disability Action Northern Ireland
Led by 4 organisations (Inclusion Scotland, DR UK, Disability Wales, Disability Action N. Ireland)
Roadshows to find diverse disabled people’s priorities
Themes: participation in social, economic and public life
Projects co-produced by disabled people and researchers
Every level of decision making led by disabled people, with researchers and policy experts
05/12/2018

6. The DRILL programme Participation
In the economy
In the community
In civic and public life
In anything
Projects co-produced by disabled people and researchers
Led by 4 organisations (Inclusion Scotland, DR UK, Disability Wales, Disability Action N. Ireland)
Roadshows to find diverse disabled people’s priorities
Themes: participation in social, economic and public life
Projects co-produced by disabled people and researchers
Every level of decision making led by disabled people, with researchers and policy experts
05/12/2018

7. The DRILL programme 210 applications from across the UK
140 from England
Variety of disabilities, ages, communities and methods
Exciting and innovative ideas
05/12/2018

8. Learning from the first round
Reaching and engaging with people who often do not have a voice
Research questions on:
Autonomy
Environment
Quality of life
We are reaching disabled people who do not always have a voice eg those with learning difficulties, mental health issues
Disabled people ask different research questions to those often asked by academics and professionals eg:
not what ‘interventions’ work but how and with what wider infrastructure does mutual, peer support improve life outcomes
not how to prevent or cure dementia, but what facilitates living a good life with dementia
and different themes – eg autonomy; supported rather than substitute decision-making
05/12/2018

9. What’s next?
10 research projects starting soon across all four nations
DRILL partner organisation project on public and policy narratives of disability
Seeking narratives of equal participation
Our 4 organisations will conduct research on how best to change public and policy narratives
Understanding what disabled people most want to communicate AND how those receiving messages frame and receive these messages
Avoiding contradictory or ineffective campaigns eg: have we moved the concept of disabled people from ‘victims of impairment’ to ‘victims of discrimination’? Have we in a time of austerity pushed for social protection at the expense of equal participation?
Seeking effective narratives of equal participation
05/12/2018