1. Myalgic Encephalomyelitis and Chronic Fatigue Syndrome ME-CFS Pathway
Refer to the Suffolk and Norfolk service provided by East Coast Community Healthcare
Patients aged under 16 years must also be under the care of a paediatrician
For more details see the ECCH website
ECCH
referral form
New Patient
Patient attends ECCH service
If the patient is aged over 18 yrs, has completed a course of treatment with ECCH and has not responded to treatment or shown minimal improvement then referral can be made for specialist review to the Suffolk ME & CFS service provided by the Suffolk GP Federation and Dr Luis Nacul.
Tests required
Urinalysis, FBC, U&E, LFT, TFT, ESR, CRP, glucose,
Coeliac serology, CK and ferritin
Consider
Hypopituitarism if the patient has a history of acquired brain injury or concussion
Specialist Review Practice Briefing
Additional blood tests required
Please provide all tests as for new patients, (glucose or HBA1c are acceptable) plus
Bone Profile and
Rheumatoid Factor or Anti CCP
Any other relevant tests
Gluten sensitivity, Rheumatoid Factor, Anti-CCP and any other relevant tests to be within the last 6 months
Suffolk GP Federation / Dr Nacul
referral form
July 2018