1. Involvement of the TB-affected community is still an unexplored resource in TB control How can we change this?
Efforts to be supported by the Stop TB Partnership and Norwegian Association of Heart & Lung Patients

2. Focal point at the Stop TB partnership secretariat
Seconded by LHL – more impact within the partnership
Goal: Affected community play a role in design, planning and implementation of TB services – Lead to being spokespersons at all levels
My role:
Play a catalytic role and initiating activities that can lead to increased empowerment, involvement and mobilization
Be a facilitator and coordinator for initiatives and activities proposed by partners
Raise the issue of involvement of the affected community within the established, professional TB community

3. What is Needed? Capacity building within the TB affected community
Document good practice of patient involvement from the field
Develop a sustainable network of different partners of the affected community
Behavioural change among HWs, capacity building
Promote Operational research

4. TB Patient Empowerment, Involvement and Mobilization
Where we are to day (A1/A2 ) and where we want to be in 10 years (B1/B2)
A → B-1
TB Patient Experts - Rep.
TB affected community has a voice
- Global level
Patient TB Experts - Rep.
Clinical and political knowledge to have a role in the established TB community
National and Global level
Activities to reach the goal (1)
- Increase participation and representation
Capacity Building
TB Patient Empowerment, Involvement and Mobilization
Activities to reach the goal (2)
Short term Long Term - Documentation of experiences - Training in medical/nurses - Development tools for empowerment and involvement school - Training of identified TB patients/ex patients - Training of HWs in field - Operational research
Few TB patients/ex patients are partner and a resource in TB services
Few and scattered initiatives of involvement of TB patients/ex patients in TB services
TB patients/ex patients are a resource and important partner in TB services
Have a role in design, planning and implementation of TB services at all levels
A-2 → B-2

5. Involvement of the TB-affected community is still an unexplored resource in TB control How can we change this?
Efforts to be supported by the Stop TB Partnership and Norwegian Association of Heart & Lung Patients