1. Renal transplantation at Birmingham Children’s Hospital NHS Foundation Trust
Fiona Gamston
Please feel free to use your own Trust Powerpoint template if you would prefer
July 2015

2. A brief description of our pathway
Referred for kidney work up and home visit once GFR < 30
Urology assessment, blood tests and immunisations commenced
Tissue typing of live donors initiated if available
Education sessions commenced in line with clinical need
Aim for pre-emptive transplant if possible

3. Key data (1) 56% of dialysis patients currently listed for transplant
10% of listed patients currently suspended from transplant waiting list
20% patients on list are not currently on dialysis
(1) Please don’t go to great lengths to collect this data; if you don’t routinely collect it that is useful for us to know – we’re anticipating that many units won’t be collecting the majority of this data.
(2) Please count a pre-emptive listing as zero so as not to skew the figures
(3) Please provide your latest data or a summary of all data received from the UK Renal Registry

4. Other relevant data
16% dialysis patients crash landers or unsuitable for transplant
21 on list, 4 combined liver kidney
Is there any other relevant data that your unit routinely collects that you would like to share?

5. Key challenges for timely assessment and listing
Urology assessment and need for surgery
Immunisations
Impact of growth on deterioration in function
Renal failure rare in children
Stick to a limited number of bullet points