1. National Foundation for Transplants
Michelle Gilchrist,
President & CEO
National Foundation for Transplants

2. Background Founded in 1983 in Memphis, TN
Serves all ages, all organ types
Mission: To save lives and ensure everyone has equal access to transplantation
Removes financial barriers which delay or prevent transplantation

3. on the OPTN waiting list waiting for a kidney, or liver 116K 95%
Americans have kidney failure. Of these, 468,000 are on dialysis
116K
95%
660K
(Sources: OPTN and The National Institute of Diabetes, Digestive and Kidney Diseases)

4. Patient Challenges 1 2 3 4 Fear of losing SSI benefits
$16,920 not retirement age, $44,880 retirement age 2
Concern of depleting retirement, savings, and other personal assets 3
Anxiety over living donor not donating due to lost wages 4
Reduced household income - increased medical debt

5. Financial Realities of Transplantation Am I Ready to Reach Out for Help?

6. TRANSPLANT COSTS IN U.S. Transplant Type Estimated Billed Charges
20% Co-Pay
Heart
$1,382,400
$276,480
Lung – Single
$861,700
$172,340
Liver
$812,500
$162,500
Kidney
$414,800
$82,960
Pancreas
$347,000
$69,400
(Source: Milliman Research Report, 2017 U.S. Organ and Tissue Transplant Cost Estimates and Discussion)

7. MEDICATION COSTS Organ Type U.S. Average Billed Charges Heart $34,500
Lung – Single
$39,900
Liver
$30,800
Kidney
$28,600
Pancreas
$22,100
(Source: Milliman Research Report, 2017 U.S. Organ and Tissue Transplant Cost Estimates and Discussion)

8. WAIT TIME BY TRANSPLANT
Transplant Type
Average Wait Time
(# of Days)
Heart
191
Lungs (single and double)
185
Liver
239
Kidney
679
Pancreas after Kidney
532
Pancreas alone
281
Kidney-Pancreas
394
(Source: Milliman Research Report, 2017 U.S. Organ and Tissue Transplant Cost Estimates and Discussion)

9. SURVIVAL RATE Transplant Type 1-Year 3-Year 5-Year Heart 91% 85% 78%
Lungs (single and double)
87%
69%
55%
Liver
83%
75%
Kidney
97%
93%
86%
Pancreas
92%
88%
80%
Kidney-Pancreas
98%
95%
(Source: Milliman Research Report, 2017 U.S. Organ and Tissue Transplant Cost Estimates and Discussion)

10. Solution for Patients

11. NFT vs Go Fund Me NFT Go Fund Me Service Fee 3% Service Fee 7.9%
Donations are Tax-Deductible
Gifts Cannot be Tax Deducted
No Gift Tax
Donor Pays Gift Tax after $14,000
No Affect on SSI Benefit Retention
Jeopardizes SSI Benefits
Personal Fundraising Consultant
Self-Driven
Provides Campaign Materials and Funding Plan
No Campaign Materials or Funding Plan
Press Release Development & Distribution
No Press Release Support

12. Patient Services Co-pay and medical expenses
Prescription Assistance for Transplant Medication and Maintenance Meds
Travel, food and lodging (patient & caregiver)
Mortgage/rent and Utility Assistance Post-transplant
Psychosocial Therapy

13. Living Donor Program
Unpaid Medical Expenses, or medical expenses resulting from complications
Income Assistance, not income replacement (based on financial need)
Transplant Related Prescription Assistance
Travel, food and lodging

14. Verify Transplant Need
Process
Complete Application
Verify Transplant Need
Develop Funding Plan
Solicit 4 1 2 3
Pay Incurred Expenses
Over the next several slides, we will look at issues within the organ transplant system, identify key financial factors in order to quantify the areas with greatest impact, develop solution that will lead towards action, provide an update on community-based participatory collaborations in progress, and propose next steps 5

15. Thank You!