1. New beginnings – the first 7 months
Yorkshire and Humber Congenital Heart Disease Network
New beginnings – the first 7 months
Debra Wheeler
General Manager

4. So what have we been up to ?
Yorkshire and Humber Congenital Heart Disease Network
So what have we been up to ?

5. Lead Clinician
Dr Elspeth Brown
General Manager
Debra Wheeler
Lead Nurse
Jo Quirk
ACHD Specialty Lead
Dr Kate English
Admin Assistant
Mireia Moriel

6. Leeds General Infirmary
D Floor
Brotherton Wing
Leeds General Infirmary

7. Visited Local Cardiology Centres
Meetings with PECs and Service Managers
Meeting with NHSE Specialist Commissioning managers
Attended PIC and NIC/ Obstetric Network events

8. - Purpose of the Network - What works well ?
Baseline questionnaire
- Purpose of the Network
- What works well ?
- What are the challenges ?
- Priorities in Year 1
Self assessment against the standards
Patient and family engagement events to come

9. - Network policies and guidelines - Education
Yorkshire and Humber Congenital Heart Disease Network website
Network Business
- Notifications
- Agendas and Minutes
- Network policies and guidelines
- Education
Different from
Work in progress

10. How to properly listen and respond to patients and families?
What do we really want to achieve in years time ?
How to properly listen and respond to patients and families?
What should the Network Board look like ?
How will we know if we’re successful?
Who are we accountable to ?

11. Baseline Questionnaire
Yorkshire and Humber Congenital Heart Disease Network
Baseline Questionnaire
Themes from the responses

12. Providing care locally Shared guidelines/protocols
Strategy development
Providing care locally
Shared guidelines/protocols
Education and Training
Achieving the standards
Improving communication
Doing improvement work
Representing Y+H nationally

13. Regular outreach clinics
Good working relationships
Regular outreach clinics
24/7 advice from Leeds
Regular network meetings
Uniform policies and procedures
Effective leadership

14. Training and availability of nursing staff in L3 units
Lack of access to echo
Long clinic waits
Poor communication about what
happens to patients in Leeds
Difficulty sharing images
No PEC in some units
LGI PICU capacity
Insufficient trained sonographers
Equipment replacement

15. Education for PECs and nurses
Developing guidelines / SOPs
Education for PECs and nurses
Assessing all units against the national standards
Sharing lessons learned
Train more people to do echo
Review service requirements against population size
Website
Improved communications
Telemedicine

16. Th The end of the beginning
Induction
Information gathering
Making connections
Putting down foundations
Scoping what needs to be done
Re-launching the Network
Now for the real work…….

17. Yorkshire and Humber Congenital Heart Disease Network
Thankyou

18. Yorkshire and Humber Congenital Heart Disease Network
Groupwork

19. What does an outstanding network look and feel like ?
Yorkshire and Humber Congenital Heart Disease Network
What does an outstanding network look and feel like ?

20. Yorkshire and Humber Congenital Heart Disease Network
What are the things we should obsess about as the Yorkshire and Humber CHD Network ?

21. Yorkshire and Humber Congenital Heart Disease Network
How should we engage with our children and families and our adult patients ?