1. Nurse Role & NET Education An Electronic Survey Across 26 Countries
Cathy Bouvier
ENETS 2018
ENETs Nurse Group

2. Survey Design 228 surveys answered from a total of 26 countries
All answered by nurses
Simple - only 13 questions
Translated into 5 languages: Spanish, French, German, Swedish & Dutch
Aimed for European but ended up giving a more world wide perspective. However this was 1 nurse in some countries e.g , so very aware that this is a snapshot of information but more than we had before and in line with development of ENETs growing as an International conference.

3. Survey Design Not Perfect! Never attempted before
Preliminary Survey to try and find nurses – utilising ENETs registry
Second Survey utilising social media, ENETs admin support, local meetings and local/national/international networks & conferences– not NET specific
Electronic survey using Survey Monkey

4. Q1

5. Q2 Number of Respondents NET Specific Nurses Non-NET Specific Nurses
221 17
204
7.69%
92.3%

6. Q3 Number of respondents Part of a NET MDT Not part of a NET MDT 22097
123
44%
56%

7. Q4
199 respondents
Asked people to tick multiple boxes – across all roles
92% of people answered are not NET nurse specialists
Majority of patients being seen as outpatients however we do not know the crossover and we can assume that some nurses will see inpatients and outpatients.
Do you see patients as inpatients or outpatients?
What is your role as a nurse taking care of neuroendocrine tumor patients within your hospital?

8. How many NET patients seen per monthQ5
How many NET patients seen per month
<10
147/211
65.3%
10-25
36/211
16%
25-50
9/211 4%
>50
17/211
7.5%
211 respondents

9. Q6
191 respondents
Where are you based within your institution?

10. Where do you get knowledge about NET's from?Q7
210 respondents
Where do you get knowledge about NET's from?

11. Q 8 – We must take note 51.4% said YES 48.6% said NO 208 respondents
Do you feel confident enough to help and support your neuroendocrine tumor patients?
208 respondents

12. Which would be the most useful to gain NET Education?
Q respondents
Choices Given
Top 3 Chosen
1-Online Education
1- Hospital Based Teaching
2-Booklets
2- Online
3-Hospital Based Treatment
3- National Conferences
4-National Conference
5-International conferences
Which would be the most useful to gain NET Education?

13. Q10 – How do you get your education on NETs?
105 respondents

14. Q11 & Q12
Able to attend national/international conference?
203 respondents
Yes = 67.5% No = 21.7%
82 different conferences and meetings named in the survey
Are you supported financially for these events?
198 respondents
Yes = 42%
No = 58%

15. Findings & Recommendations
More statistical analysis unpick country specific information& look at all data more specifically
Q11/12 missing paramount question – who pays?
The face value data shows we should move forward with educational strategies focusing on online & hospital based teaching
Success will require collaborative approach - an MDT approach
Interesting question raised about relevance of content at International conferences - not specific enough for nurses? Lowest form of education in this survey
Look at educational initiatives that have worked on a European scale in other cancer types
Nothing from France – need to encourage participation
UK, Germany, Ireland, Turkey, Spain most prominent
51.4% of nurses not confident in knowledge of NETs – that has huge impact on our patients
Use what we have learnt to plan 2019/2020 the year of training!

16. NET Patient Foundation
ENETS Nurse Group
Thank you
NET Patient Foundation
@netpatientfound