1. KLS: From the Eyes of a Provider and a Parent
Christopher Hamper P.A.-C
By:
Internal Medicine

2. Provider Finding a provider: Internet Word of mouth
KLS Foundation Website
YouTube
Word of mouth
Connect and talk to other patients
KLS Facebook page/group

3. Provider Follow up and stay connected: Call with any new questions
Log “ALL” episodes and any sign/symptom changes
Stay current on your diagnosis
Keep checking in with your provider

4. provider
Make an appointment with a KLS provider even if he/she is not your PCP:
Make sure they take enough time with you
Make sure they are caring and understanding
Make sure they “listen”
Bring all your labs and diagnostic information with you
Ask questions !!

5. provider Create a “Never give up attitude”
It will allow your provider to take your condition personal
Let your provider know what assistance you need with your school, family, and/or job
Create an open line of communication with giving consent to others close to you allowing contact when your in an episode

6. Parent / caregiver Be caring and understanding:
Provide support with all “Activities of daily living”!
Never leave alone!
Make a safe environment that is not judgmental

7. PARENT / CAREGIVER Help with daily Hygiene: Shower Oral hygiene
Clean bedding
Clean clothing

8. Parent / caregiver Patient Safety: Never leave alone during episode
“Life 360” tracker app
Medical ID bracelet/necklace
Restrict driving privileges
Alarm sensors on all doors/windows

9. Parent / caregiver Do not let these episodes stop your kids life:
Just pause and apply help when needed in any way
Provide “help” with getting accommodations with school/job
“Encouragement” to move forward and get through difficult times
Make sure your child is ok with telling his/her story

10. Parent / caregiver Make sure family and close friends are aware:
Give close friends and relatives medical literature to help them understand
Meet with school/job as parent advocate
IEP
504 Plan
Hospital Homebound
Create new accommodations if needed
Meet with teachers/coaches

11. Parent / caregiver Positive thinking:
Open the door for communication as often as possible
Offer medical and mental help if needed or wanted
Seek help immediately from your provider and/or parent if treatment needed for depression and anxiety

12. Parent / provider NEVER GIVE UP: WE WILL NOT LET LIFE PASS YOU BY !!
WE ARE ALL HERE FOR YOU !!
WE WILL NEVER STOP STRIVING FOR A CAUSE AND A CURE !!

13. My patient and our son:
Michael Hamper

14. Thank you all very much…
CHRISTOPHER HAMPER P.A.-C
INTERNAL MEDICINE
210 JUPITER LAKES BLVD.
BUILDING 4000, SUITE 104
JUPITER, FLORIDA, 33458