1. Standardized Clinical Assessment & Management Plan
SCAMP℠
Standardized Clinical Assessment & Management Plan
PES Business Meeting
May 4, 2013

2. Background: SNoPE Study Network of Pediatric Endocrinology
Pilot program targeted to demonstrate feasibility
2 abstracts and 2 publications
Presented this concept to NIH with follow up
Nearly achieved acceptance of R10 RFA
Duane Alexander resigned
Delay in naming new director
Not a priority for NICHD with their financial constraints

3. Background: Shift to Quality Improvement
Quality improvement activity required
MOC credit required for recertification
Many institutions are requiring QI projects
Our Challenge
Develop a program that will
Meet our members’ needs and
Improve quality of care & outcomes for our patients

4. Background: PES Board Approach
Reviewed possibilities
Selected 3 for formal presentations to the full BOD in April 2012
Subsequently
Series of negotiations & discussions
Contracted with the Institute for Relevant Clinical Data Analytics (IRCDA)
A not for profit corporation out of Boston Children’s Hospital and Massachusetts General Hospital

5. A SCAMP℠
A means to guide clinical assessment and management to learn more about conditions for which there is limited available evidence
Created by a group of expert clinicians as an algorithm outlining current sound practice based on any available evidence
Develop SOUND PRACTICES -- Not Clinical Practice Guideline
Methodology to improvement in quality, cost & value of the care
Fill specific “holes in our knowledge”
Participates are encouraged to deviate from the algorithm
As long as reasoning is provided
These differences will lead to new understanding of sound practice

6. A SCAMP℠ A SCAMP℠ lasts ~ 2 yrs Data reviewed
q 6 months (or every 200 patients)
To permit revisions if needed
Quarterly data review will occur for clinicians seeking MOC credit
Once closed the data are available to all

7. A SCAMPSM A SCAMP℠ is considered QI Only de-identified data are used
No IRB approval necessary for the SCAMP℠
But minimum risk approval may be necessary to use data for publication in a peer reviewed journal
If necessary we will help you with this

8. Value of SCAMPsSM to YOU
Use of expert algorithms developed by your PES colleagues to guide future sound practice
Reduce variation in the care to be better able to assess outcomes
Contribute to the knowledge base for conditions important to pediatric endocrinologists
Opportunity to
Meet your organization’s QI requirements
Obtain MOC Level 4 QI credits
Opportunity to be part of development SCAMPs℠ and/or quality improvement/outcomes research

9. Value of SCAMPs℠ to Patients & Families
Improve quality, cost, and value of our care
Focus on meaningful diagnostic testing and more appropriate follow up
Reduce unnecessary care and testing

10. Value of SCAMPsSM to PES & Our Field
Enhance members’ ability to collaborate
Engage a greater number of us in a scholarly activity
Improve
Our knowledge of the conditions we treat
Quality & cost-effectiveness of the care

11. AVAILABLE TO PES MEMBERS
LEVELS OF PARTICIPATION IN SCAMPsSM
AVAILABLE TO PES MEMBERS
Enroll Patients in ≥ 1 SCAMP℠
# of Participating Ped. Endocrinologists
Help Monitor & Interpret Data to improve the SCAMP℠
(Such involvement provides opportunity to meet MOC QI credit)
Time Commitment
Help Develop a SCAMP℠
and / or oversee data interpretation
Disseminate
Information
Informing new
SOUND PRACTICES

12. Current State and Timeline
Contract signed for 3 SCAMPs℠ / yr for 3 years
Because of IRCDA’s interest in PES participation they are funding half of our costs from their foundation.
Initial Topics selected
Estrogen replacement in hypogonadal girls
Pre-diabetes
Congenital Adrenal Hyperplasia
EACH SCAMP℠
Will have a Chair (to be named)
Committee of Experts from PES appointed (no more than 5)
Training of Chair and SCAMP℠ committee members
Develop SCAMP℠ materials and member confidentiality agreement
Pilot all of the processes
Anticipate the first three SCAMPs℠ to start within a year

13. SCAMP℠ Oversight SCAMP℠ Steering Committee Board of Directors
Morey Haymond
Siri Greeley
Karen Rubin
Erinn Rhodes
Amy Wisniewski
Board of Directors
Periodically review progress

14. SCAMP℠ Handout You should each have a SCAMP℠ handout
This outlines much of what was presented
Participation of whole divisions or group practices
Encouraged but not required
Select a SCAMPs℠ CHAMP among the group
Has answers to anticipated FAQ
Provides contact information
Morey Haymond
Christy McGinty at Degnon Associates
All members (including fellows) will be receiving an with the trifold attached
We will keep you informed via & monthly Missive.

15. This will be an exciting new addition to PES
Thank you for your attendance
We look forward to working with each of you