1. Empowering Families Through Support and Education
Mended Little Hearts
Empowering Families Through Support and Education

2. Your baby has a congenital heart defect.
Each year in the U.S., about 40,000 families will hear these words:
Your baby has a congenital heart defect.

3. Common Reactions Grief Fear Anger Confusion Guilt
Loneliness--wanting to connect with others who have “been there”

4. Mended Little Hearts Is There
National program whose mission is to empower families affected by congenital heart disease
Began in 2004 with 2 groups—now has 86 groups in 30 states & DC
Community-based & volunteer-led
Works with hospitals and medical professionals to provide services for families that compliment medical care

5. Hope, Help, Healing Peer-to-peer support
Families can connect with others who truly understand because they have similar experiences
Members share experiences to help them find answers to non-medical questions and learn to live with CHD
The Accredited Visiting Program supports families with kids in the hospital

6. Hope, Help, Healing Education
Coming soon—the digital Little HeartGuide Parent Resource
Webinars on topics families need
s with tools and tips for families
Educational programs in our communities to give families needed information

7. Hope, Help, Healing Connection with resources
Local groups connect families with needed resources in their area
National website contains resources to help families care for a child with congenital heart disease throughout his or her lifetime

8. Hope, Help, Healing Bravery Bag Program
Bravery Bags are given to families in the hospital
Bravery Bags contain toiletry & comfort items along with educational materials
Families know they are not alone

9. Hope, Help, Healing Awareness
National and local CHD Awareness Activities
Rock Your Scar Campaign to empower kids and adults with CHD
Roar ‘N Run Virtual Charity Race
Local group activities

10. Hope, Help, Healing Advocacy Advisors about Family-Centered Care
Promote CHD Research Funding
Promote CHD Surveillance
Support Pulse Oximetry Screening
Support CPR in Schools
Speak on issues that impact our families

12. THANK YOU!