1. I believe in the power of collaboration to solve problems
Debi Willis
CEO / Founder of PatientLink
Wife, Mother
Daughter - of a brilliant woman with Alzheimer’s
Sister - of an incredible woman who died of brain cancer
Cancer Survivor - grateful for this time
I believe in the power of collaboration to solve problems

2. Consumer Health Data Aggregator Challenge, Phase 2
First Place Winner
Consumer Health Data Aggregator Challenge, Phase 2

3. Why did we build MyLinks? Why did we enter the contest?
As our beautiful planet spins through space, events are happening around us.

4. The story all starts with the invention of electronic health records
Doctors need data to better care for patients
But they do NOT want to manually enter
all that data

5. We built PatientLink to meet the doctors needs
Patients send their data into EHRs as structured data
Doctors had data they needed so they
could take better care of their patients

6. Then I became a caregiver for I needed all her records
my mom with Alzheimer's
I needed all her records
So I could take better care of her

7. Then I was diagnosed with kidney cancer and needed copies of all my records
It was NOT an easy task

8. I decided it was time to build something for patients to gather their data from EHRs
As our beautiful planet spins through space, events are happening around us.

9. Linking Us Together in Three Areas
with all our care providers (and data)
with researchers
and with each other
It also links us with 3 important groups:
With all our care providers (and our data)
With researchers
And with each other

10. We had been watching FHIR from a distance
It was hard to believe that EHRs vendors
would agree to use a common API structure

11. We heard about the ONC contest and decide to jump in!
As our beautiful planet spins through space, events are happening around us.

12. We wanted to prove that one API could be used to gather data from multiple EHRs

13. The ONC challenge was the perfect way to encourage innovation
using FHIR

14. Demo

15. Future Release - Forum
Connecting with others who understand what we are going through is very important in our journey. Users can connect together via forums

16. Public or Private Conversations
They can also learn more about other users and connect directly with them in a public or private conversation.

17. Vital to FHIR's Continued Success
FHIR endpoint directory (A single consolidated list for FHIR apps to locate production endpoints)
Knowledge-based verification to allow patients to gather their data from EHRs (instead of portal credentials)
NIST section outlines the requirements for knowledge-based verification
HHS: “form could ask for basic information about the individual that would enable the covered entity to verify that the person requesting access is the subject of the information requested or is the individual’s personal representative“

18. Debi@MyLinks.com 405-446-4799 Debi Willis MyLinks.com
MyPatientLink.com