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AREA HOMELAB Improving quality life of children affected by autism

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Presentation on theme: "AREA HOMELAB Improving quality life of children affected by autism"— Presentation transcript:

1 AREA HOMELAB Improving quality life of children affected by autism
Hospitality, Research and E-health technologies for Autism Improving quality life of children affected by autism and of their families

2 Autism: what is? Problem of public health
Disturbance to development socio-communicative Disturbance to the evolutionary age Behaviors restricted and repetitive Autism Scenario Data The project Solutions Support us

3 Diffusion Multiple Sclerosis: 0,4 per 10.000 abitants
60 million people affected in the world Since 2009, in the U.S., 1 in 110 children(Centre for Disease Control) In Italy we are talking about cases per 10,000 people Diffusion Multiple Sclerosis: 0,4 per abitants 2012: € (*AISM) Leukemia: 0,01 per children 2012: € (*AIL) This disability, within a spectrum of severity levels and trends of evolution, persists throughout life and requires complex interventions with a cost to the Regional Health System which has significant impact on the subject himself, his family (especially the mother) and on the community. Autism Scenario Data The project Solutions Support us

4 Long and complex route for the diagnosis
Censis 2012: 80% of cases are identified by their mothers (particularly in the second year of life ,41%) 45% of households have waited between 1 and 3 years for the diagnosis, 13% over 3 years On average 3 specialists should be consulted to obtain a definitive diagnosis About 30% following a pharmacological therapy (there are no specific medicines) Among adolescents and adults, 30% do not make any type of therapy (psychological, educational, social) Autism Scenario Data The project Solutions Support us

5 Scenario Traditional treatment often does not produce effective results Strong impact on public health expenditure Strong stress within families, generator conjugal conflicts and crises Disorientation for families, due to the lack of a center who will take in charge the problem Private expenditure for households between 1,000 and 2,000 Euros per month Negative impact on the working lives of parents Autism Scenario Data The project Solutions Support us

6 Needs Early diagnosis Ad Hoc evaluation
Innovative therapeutic interventions with active and supported involvement of parents Continuous monitoring and interactive communication between specialists and family Autism Scenario Data The project Solutions Support us

7 AREA Model 2 - Early diagnosis 4 - Parent coaching
1 - Screening for children months 2 - Early diagnosis 3 - ESDM therapy 4 - Parent coaching 5 - Continuous monitoring 1 - Monitoring of the child by the pediatrician due to its link with the family and the use of the technological tool 2 - Enables to identify and formulate a personalized treatment for the child 3 - Aimed at cognitive improvement and learning methodologies 4 - To change the behaviors and lifestyles and promote the empowerment of the family 5 - The technological tools analyze the behavior of the child during treatment and tele-rehabilitation Autism Scenario Data The project Solutions Support us

8 AREA: Home Lab Mini apartments equipped with advanced technology solutions that will accommodate children and their parents for a short period (2-3 weeks) during which young patients will be clinically characterized and sent to a rehabilitation program while their parents will be trained in the new role of co-therapists that they will perform at home. Autism Scenario Data The project Solutions Support us

9 AREA: le tecnologie remote eye tracking for the transduction of visual focus and eye contact wireless signal acquisition for the analysis of brain rhythms and timings miniaturized sensors and non-invasive physiological parameters (ECG, EDR, temperature, motion) to study the autonomic system cameras and signal processing algorithms for the analysis of movement and performance in tasks of social interaction, attention and imitation acquisition system and audio signal processing algorithms for the analysis of the frequency content of the voice evaluation system ADOS-2 scales and diagnostic gold standard Autism Scenario Data The project Solutions Support us

10 Solutions New model of social health Early Diagnosis
Continuous Monitoring Parents co-therapists Reduction in private spending of households Reduction in public spending Autism Scenario Data The project Solutions Support us

11 AREA: outcomes Building an agreement between parents and therapists
Significant reduction of time spent by the child at specialized centre Great value from a social point of view and development of the entire family Extension and replication of the project on the entire national territory Greater economic and social sustainability of the economic public facilities Saving on the private expenditures Autism Scenario Data The project Solutions Support us

12 Support AREA Autism Scenario Data The project Solutions Support us

13 HOW? Public ? Private ? Social Private!

14 Let’s find a fund raising solution for this project
Costs are around Euros per year Any idea? How would you set a strategy?

15 Internal audit/stakeholder analysis
Needs analysis Ethical evaluation Market analysis SWOC analysis Strategic analysis Internal audit/stakeholder analysis Strategic plan Strategic formulation Sustainability evaluation Business Plan Tools and actions

16 Needs analysis Ethical evaluation

17 Market analysis Strategic analysis SWOC analysis

18 National Council for Research
Stakeholder analysis Strategic analysis SWOC analysis National Council for Research Social enterpise working on assistance to disadvantaged people (400 paid workers, 10 milions of revenues) University of Rome Tor Vergata - Reserch area on non profit management and social innovation Fundraising Lab – Spin off between Tor Vergata and Sotlab S.p.a. Executive Master in social management

19 Internal audit/stakeholder analysis
Market analysis O C Internal audit/stakeholder analysis S w

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29 Social (media) Marketing
Tools and actions Fund raising Social (media) Marketing Project management New sth New sth EU Projects (Horizon 2020) Pricing Task sth:

30 Your evaluation of AREA
Thank you!


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